Posts Tagged ‘disability’

Am I going to do this again? I don’t know.

So, not too long ago I had the first of what is supposed to be two nerve ablations to the back of my head to see if this stymies migraine pain. They numbed the back of the left side of my head after liberally applying chlorhexidine to it, which I liked a lot because numbing it with lidocaine (did they also use dexamethasone? I don’t know) has immediate effects on any pain that I may be having. Once that fully took, they inserted probes into the back of my head that I did not even feel that sent pulses to the left side of my occipital nerves over the course of four minutes. Once I was done I was done. The probes were removed, I was bandaged up, and I was good to go. Getting home was… fun, though, especially once the local anesthetic wore off and everything hurt. I was told that the nerve “healing” would hurt a bit, but then it would stop hurting because it would not be able to communicate feelings of pain (or as effectively, anyway), but we’re still in the part of that where it hurts, I feel a whole lot of pressure, my body is trying to make sense of what happened, and I don’t like the feelings that this is producing in the back of my head. Fioricet has not even helped me here.

I have literally had to take 40mg to 60mg of prednisone to make the back of my head feel tolerable.

I’m not sure if I’m going to have the right side of my head done if this is how the left side continues to feel.

I mean, I should really have expected this too.

Bub and I are sick with… something. It is not COVID. We’ve tested for COVID with some of the tests that we have here at the house and both of them are negative. If we continue to have concerning symptoms I will have both of us antibody (or is it antigen?) tested. This will be particularly concerning for me if I have it.

I am also continuing to get severe migraines on Lexapro that are only touched by prednisone, and this is not sustainable for long periods of time. I’m starting to wonder if this medication is… just not right for me, because we might have to throw pain medication at it just for me to be able to tolerate it, and then that’s going to start a chain of events that might interact with other medications that I am on that I need to be on.

If it’s not one thing around here, it’s another…

I seem to oscillate between people thinking I am “not severely disabled” and can hold down a conventional job to people thinking that I am so disabled I can’t work at all, and I’ve seen this oscillation happen between a day or two at the least. It’s almost like whiplash. And it’s almost always from able-bodied people, too.

In other news, the cord that I needed to set the gaming computer up has arrived and is functional! I just need to get the Wi-fi adapter that came with the computer to work because it is not working for some reason… all I have to do is get this oe thing fixed and I can begin loading the new computer (which will take some time, and will probably cause no shortage of migraines). That said, I’m getting back to work on loading this thing.

I mean, this is only taking forever but yeah.

This time, I’ve been in the process of getting a lawyer to help me get disability benefits. So far it’s basically been a game of phone tag getting my pain management clinic and psychiatrist’s office to fax things to this lawyer’s office so that they can go over them and see if my case is a good fit for them. I don’t even mind the idea of a lawyer taking backpay from any settlement that I am awarded because that means that I will have won and will finally start getting disability benefits that I have been owed for years. With my migraines, Social Security has refused to equal it to the closest epilepsy listing for years, even when I have pointed out that this is the proper protocol with them. They just refuse to do it. The ALJ that I have gotten twice over the years is racially biased, as she treated me a lot better when she thought I was Black (and my full first name seems to be more common amongst African-American girls and women, although I thought that my voice made it clear that I am white over the conference call for the hearing… I digress). But now Social Security is going to have to deal with reports regarding anxiety and depression from my psychiatrist, which is another listing that I may be able to get if not equal. I’m finally having that worked up and being put on better, stronger medication to attempt to ameliorate symptoms of it. My psychiatrist is open to other medications as well, concurrent ones, so I am thinking about asking for a medication just for anxiety in addition to Lexapro.

If I can, though, I’d like to make something out of streaming. It can be something that I… do, especially when I feel well. It’s something that I would love to do and make a thing, although I am also aware that it tends to take years to get noticed enough to where it is self-sufficient. Tomorrow the cord needed for the gaming desktop should be here, I should be able to start it up (why didn’t the person selling us the monitor just give that one cord to us?! they said that they were sending everything with it, but I… sigh), I can begin to install things and move around the USBs a little bit. This ought to be fun! And take me a little while. I’m not worried.

I mean, I should have expected this at this point…

I was supposed to get tested for autism yesterday, or so I was told… but all I had to do was put myself on the waiting list to be tested, and county testing can take anywhere from six to nine months. So I’m going to ask my psychiatrist about it when I see him next month (technically I see a nurse practitioner, but at a psychiatric clinic, so I’m sure that someone can get me in for the testing that I’m told I need there… I mean, it’s a full-blown psychiatric facility that caters to all kinds of diagnoses). I’ll do whatever I have to do to get the diagnosis on paper, especially because so many people have indicated that they suspect that I am autistic and I would like to have diagnoses for things that I have. There’s also the fact that my mother medically neglected me while I was a child, which I’m not entirely sure I’ve covered in here, but I do aim to cover it at some point. I know I covered the months that led up to her death, but I don’t think I covered the fact that she as my primary caregiver actually severely medically neglected me as a child, and neglected me in general.

I suppose I should come up with some kind of tag for this to make organizing it more easier.

I guess that will happen in time.

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