Posts Tagged ‘disability’

10
Mar
2022

Prednisone hates me and still clearly hates me.

categories: personal; word count: 258 words

I’ve seen the doctor once for this and I was prescribed antibiotic gel to put on the wound at dressing changes, but… that isn’t actually going well, so I will probably have to see the doctor again for the wounds that Bub gave me on my right arm pinching me while having meltdowns, because apparently he broke skin and now it is infected. I also have a few other surface-level Staph infections on random places on my skin that continue to be and stay bandaged and are hidden by clothes, but I’ve been off of prednisone long enough to be able to get my booster COVID-19 shot (finally!). I think at the end of the day, prednisone has broken me as I’ve referenced several times already in here. I wouldn’t have taken it again if my primary care doctor and pulmonologist didn’t tell me to continue the burst and taper that I had been prescribed due to a worsening of asthma symptoms. And on top of that, I feel like I should have held out for the J&J booster rather than get the Pfizer booster recommended by the pharmacy because I actually feel sick, not just “feel sick” like you do when you get immunized and your body is beginning to make antibodies to fight actual contact of the virus with should the need ever arise (as it likely will during, well, a pandemic of all things).

Either that or I should have waited longer than I did to get re-vaccinated even if I waited “long enough”…

01
Mar
2022

At this point, I should really have expected this.

categories: personal; word count: 228 words

Tomorrow the massive screw-up that was “let’s see if you suffer from medication overuse headache and, in doing so, limit the one medication of yours that actually works because we didn’t bother to read your medical chart where MOH has repeatedly been ruled out” should get fixed, but given that this is the War on Pain Patients I don’t actually have that much hope for it. Some doctors read my chart better than others, and the ones who I can tell didn’t read my chart suggest that I should take aspirin or Ibuprofen as needed for pain even though both of those things worsen my asthma — it used to be that I could more safely take them while on prednisone, although there were instances where I tried taking them with Benadryl and nebulized albuterol, but that didn’t sufficiently make them safe to take and it eventually got to the point where I couldn’t take them with anything unless I wanted to have worsened asthma as a result (which, obviously, I do not). In the absence of being able to take either one of those — NSAID-reactive asthma is a thing — I can only safely take what I am prescribed to take. I wish they’d prescribe me something long-acting that works.

I just want to be able to engage in hobbies and interests knowing that pain medication will somewhat help.

12
Feb
2022

This is not where we need to be at, fam.

categories: personal; word count: 274 words

Captain’s log, day 6,666: the right side of my jaw began to swell and hurt. Took prednisone. Hate prednisone. But I’m feeling better. Am still not sure why that happened in the first place but hey…

This month’s appointment with the pain management clinic that I attend did not go well. For some reason I was prescribed less of the pain management medication that works (Fioricet), and I was prescribed… a copious amount of muscle relaxers. I was prescribed these years ago in conjunction with Fioricet and I felt like they helped, but that is not the case this time, so I’ve been (self-ownership of word here) feeling stupid and tired as I stumble into things. I honestly think I’m going to stop taking them, as I’ve been told to take them twice daily as needed, because they are clearly not helping me out at all and I am still in pain. I don’t want to seem like a drug seeker or anything, but we are not yet at a place where I feel like I can indulge in hobbies and interests with the time I have to participate in them without having to work around that by scheduling doses of medication and wearing 80% amber-tinted sunglasses. So how do I speak up here?

At any rate, sunglasses and all, the boys’ all-in-one computer is almost fully loaded! I will then defragment the HDD drives, which are thw two external drives currently storing the majority of Bub’s games, and at that point I think I will have at it. I might bring up Among Us, music and all, to see if Bub runs in here squealing.

01
Feb
2022

I need to come up with clever subject lines.

categories: personal; word count: 200 words

As probably predicted, I am still trying to get off of the prednisone train.

However, I absolutely needed it yesterday when Fioricet did not work.

I was actually at about a nine out of ten on the pain scale.

And I still hate this medication… I really, truly do. My body just does not like it any more.

In other news, our dryer died a peaceful death of old age last weekend. We contacted an appliance repair specialist about it that was supposed to come out to our house to see if it could be repaired (and if so, how much that would cost), but they never showed, and they never even called to let us know that they would not be showing. So we have to follow up on that. This afternoon, someone is supposed to bring a new dryer to our house so that we can actually dry our clothes without having to hang them after they’ve been washed. Good times… I guess. I guess we’ll be seeing how that goes in several hours when it should arrive.

We usually run two dryers here, so the jury is still out on whether this one can actually be repaired.

22
Jan
2022

Here we’ve got Omicron, screwing up more shit.

categories: personal; word count: 207 words

Since more and more hospitals are going back to doing only necessary surgery, the work-up for severe diastasis recti that I was undergoing seems to have to be shelved. Since I don’t intend on having any more children, it wouldn’t have been a significant bother for me to undergo surgery to correct it, and I could lower my dose of prednisone if needed such that it would be as safe as it was ever going to be — assuming, of course, that I ever took it again, which I don’t want to because my body has finally gotten to the point where it can no longer manage oral steroids without sometimes significant problem. I mean, if they do it at any point during this pandemic, they do it. I’d ideally like it to be done as soon as possible so that I can get it done and heal from it, but if it’s not safe to do because COVID-19 cases are once again climbing and we have a mutation out there that more people are susceptible to… then I’ll wait. Even though I won’t like it…

And the saddest thing of all is that this could have been picked up on years earlier than it was even noticed.

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