Posts Tagged ‘life’

This was the straw that broke the camel’s back.

I think this was actually the last time that Bub came up to my mother while she was alive.

I gave her several chances (more likely nearly actually pled with her, if not outright did so) to apologize to my son for her treatment of him, and she refused to do so each and every time. I know that it had to have been more than ten. But the one that burned me up the most was the last time that he happened to be near her, after I had fed her one of her meals. I asked her to apologize to him for her treatment of him while he was sitting right there, hoping that him being in close proximity to her might encourage — or even incentivize — her to do so. And I made sure never to word any of my requests in a manner that “placed blame” on her, not wanting to push her further away from doing this than simply making the request might, actually wanting her to apologize to him at some point while she was still alive, figuring that we were at the point that she might not have that much longer left if she needed help to get to the bathroom from the bed and back, in and out of the car, and someone to help her eat puréed foods because she could not swallow anything thicker than that (and she was starting to have difficulties with those, which meant feeding her took time).

But no. She blows all of that up by verbalizing the word “no”, right in front of him, as he is sitting there.

Even though Bub has severe communicative delays, I presume competence. I don’t assume that he can not or does not understand something unless that has been conveyed to me. So it was at this point that I decide to stop asking her to apologize to Bub for what she has done to, and said about, him, because she has made it abundantly clear that she is never going to — I feel as though it is a waste of time on my part to continue to ask, and if she ever suddenly changes her mind, she can make that clear to me on her own time. But at this point, I’m put in a position. I have to choose between my child and my mother. Something’s got to give.

I’m put in the screwed up position of having to choose between the person that gave birth to me and the person that I gave birth to, because one of them is forcing my hand and through her own deliberate actions continually making this the situation that it has become. And as much as it would not have been a decision that I would have wanted to make in the first place, I do not falter. To this day, I know that I would have made the same exact decision, and I would have done things the same exact way if given another chance.

I tell my mother that she is no longer my mother and that she will remain this way until she apologizes to my child. I am her caregiver, and I will remain her caregiver until she passes away. But I am no longer her child.

If her opinion of my child is so low that he is not worth apologizing to, I am not worth having as a child.

Based on the look on her face as I said this to her, she understood every word that I said and she didn’t care.

The second thing. The camel’s back? Almost broken.

Some of you will understand the subject of this post as I continue to make these posts and you keep reading.

As my mother continued to need more help ambulating, such as getting up from the bed to use the restroom, Bub would occasionally see me assist her. In my eyes, the straw that broke the camel’s back in that it actually got my mother told that she was no longer allowed to talk to that child of mine (for what would become the rest of her life) was him coming into the room and getting up on her bed while I had her in the restroom. I would have asked him to leave the room, or walked away from her long enough to get him to leave the room, if I could have walked away from her long enough to do so, but at that time I could not. She decided to shout at him as I was assisting her, to the point that I could see spit fly out from her mouth and the veins bulge in her neck, that he was — and I’m just going to quote her on this — a “broken, retarded piece of shit”. I could see him react to this, even though his communicative delay meant that he might not have understood the meaning of those words. But there was the intent, and there was the tone. (Some of the people who wonder why I continue to refuse to forgive her to this day speculate that she might have done this “because she had a brain tumor removed”, “because she was undergoing cancer treatment”, or “because she was losing her mind at the end,” quite likely having developed dementia toward the end of it. To me, there was absolutely no excuse at the end of any of it to make it clear that she did not like one child of mine while continuing to treat the other child like nothing at all had changed, and someone should have held her as accountable as she could have been held during periods of lucidity. My job was protecting my child.)

Needless to say, we had an extremely long conversation about this after I had confirmed that she continued to be in a period of lucidity. I was completely civil during this conversation, but I was not polite. She was told that she was no longer allowed to talk to that child of mine, bar one incident that I will later write about. I made sure that she heard, and understood, every word that I had to say. She did not appear to like being held accountable for this, but I made sure that she was, and I made sure that she would be keeping her mouth shut about however she felt about this child of mine whenever he might inadvertently have been around her or within earshot of her from that point forward. And, from that point on, she did exactly that.

It would be the last time that she ever said anything insulting about my child where he could hear it.

I made sure that Bub knew, with the words that came out of my mouth, with my tone, and with my intent, that he was absolutely none of those things. That he would never be any of those things, and that was final.

From that point on, it seemed as though he believed me and trusted me a lot more than he trusted Grandma.

I was glad for this, and I was thankful for this, because it would make the coming months easier to deal with.

The first of the… incidents that I will write about.

Please note as you read about this incident that my mother has been dead for nearly a full year now and that this incident was handled appropriately. With more and more time passing since her death and the fact that I do not bring her up to either one of my children if they do not bring her up to me or convey that they would like her conversed about, both of my children are doing exceptionally well, but especially Bub. I do not have any regrets about how I handled “the situation” as a whole, especially the… “latter parts” of it, and I refuse to allow people to attempt to make me feel bad for it, or to feel remorse for her loss or sadness for her death given the circumstances. Given what occurred, I feel as though I am coping the best way I know how.

The first incident that happened in the… series of incidents took place on Christmas Eve of 2018, which ultimately wound up being the last Christmas that my mother was alive. For some reason, she insisted on wrapping all of the presents that she got for both of the boys. Being autistic, and being primarily non-speaking, Bub did not understand why he “had” to leave the Christmas tree alone and why he could not touch the Christmas presents until the following morning. Nebulizing my evening doses of maintenance medication, my mother was watching him, which was something that she had done all of the years that I nebulized my medication, which made it easier for me to take the medication — this was just something that she had done for years, something that she wanted to do and made it clear that she did not at all mind doing (especially being tethered to the cord that connected my mouthpiece to the nebulizer limited how far I could move, and if I suddenly needed to get up to do something I would have to turn the nebulizer off and put the mouthpiece back on the machine). I had no reason to think that evening would be any different at all.

It was not until awhile had passed, long after I had nebulized my evening doses of medication and was in the process of placing Bub into his evening clothes that I would discover that he had been spanked for these things (without my consent). The only reason that I even came across this information was by happenstance, as one would say — marks had been left. I would not find out for months that it was actually my mother who had been the one who did it, but she would eventually admit to me that she was the one who had… done this, and exactly why she had done it. Naturally, to “calm me down”, she would reassure me that this would never happen again. To this day, I think she only “reassured me that this would not happen again” because I had found out about it, and not because she felt bad that she had actually done it. And as sad as it may be for me to type this next bit out, the only reason that she probably didn’t attempt to do this again was because she lost the ability to walk without assistance shortly after admitting to me that she was the one responsible for this. After this point, though, I made sure that Bub was never again left alone with her. I made sure that he remained with me when I nebulized anything, whether it was albuterol or my maintenance medications, or that I knew exactly where he was at in the house while I was nebulizing (and that he was not around her while I was doing so, as I could leave my bedroom door open and still hear well enough where in the house he was at). Even though she was no longer ambulatory, it was still what she did.

I also noticed that from this point, spare one incident, Bub did not want to be around my mother any longer.

No surprise.

My activism is Barret Wallace and Katniss Everdeen.

As of Monday, my county had six more confirmed, positive cases of coronavirus (COVID-19). And it seemed that almost as a direct result of that, if not a direct result of that, the decision was finally made to issue a shelter-in-place (“stay home”, as some people like to call them so as not to incite unnecessary panic) order until April 3rd. I am still not sure what the local school district is going to do in regard to whether or not they are going to attempt to fling the doors back open on the sixth, as April 3rd is a Friday, but it would not surprise me in the least if they at least made the attempt since this district has never been known for making good decisions. As I’ve mentioned in previous entries, they are one of the last if not the last to “call” bad weather days… and sometimes they didn’t, even when every other district had, and even when the local two-year college (and four-year university) had. You can’t tell me that this district is not about the “dolla dolla bill” until they prove otherwise. And blocking dissidents, or people who don’t kiss their ass, on social media is not proving otherwise. Especially because the “manager” of the Facebook page admitted that they “were a nineties kid who attended the district (themselves)”, so yeah, I’m at least partway sure that you might know my name. Sing it loud and say it proud, I grew up to become the disabled Katniss Everdeen now, did I not?

Bub and Monster’s occupational therapist has cancelled in-person therapy sessions until further notice, so they may wind up seeing a new occupational therapist “to fill the gap”. Monster will begin seeing a new speech therapist at the start of the month assuming that things do not absolutely go sideways since the speech therapist that he has had since he was extremely young is moving to another clinic, and I did not want to uproot the kids from the clinic that they have gone to since they were extremely young unless I absolutely had to because there was no other choice in the matter… sniff. Their clinic is a really good place.

Soon, I want to get Bub back into speech therapy since he has been on break from that for a little while.

Catholics on Twitter are raging that all dioceses have shuttered church doors until further notice, holding no public masses. Must you insist on public masses in the midst of a global pandemic on the backs of your at-risk brethren for something not necessary to live? Are us at-risk folks really wor— wait, don’t finish that one.

I know that us at-risk individuals aren’t worth anything to you or else you’d peacefully quarantine at home…

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