Posts Tagged ‘health’

This doesn’t surprise me, but it saddens me.

As a direct result of this pandemic, my pulmonologist does not want me to take prednisone unless I really need it and there is no other alternative. This is because prednisone is a fairly potent immunosuppressant and we are seeing an uptick in the number of COVID-19 cases in this state (once again) because of our governor’s incompetence, and if I am on prednisone — or have been on prednisone really recently — and am actually exposed to it, this may incapacitate my ability to fight it off. This would obviously be bad for me for a number of reasons, the least of them being that I am definitely not a mild asthmatic. And I mean, I can see where my lung doctor is coming from making that recommendation. But it just sucks that he has to make it…

We could have ridden this out longer under a longer stay-at-home order, opened the economy up over a longer period of time, but no. The governor pandered to people literally whining over “the economy” and “going back to work”, and as a direct consequence of this, we have to pay the price of closing everything back up again because the largest hospital in the state and the country could not handle the ICU caseload.

I can’t help but know for a fact that if we had any other president this would have been handled better.

Although prednisone is not the wrecking ball for me that it can be for other people, it has helped in the past when I have had more severe, enduring exacerbations, so it does suck that I can not fall back on this right now, so I am hoping that Symbicort works well in the interim. And speaking of that, when I get a chance I’m thinking of replaying Final Fantasy XIII with New Game+ or maybe even Final Fantasy XIII-2 while I conveniently slow walk Lightning Returns — yes, I’ll get around to finishing it, someday. Really, I will here.

Times this doctor took me seriously: 0

Bub would not leave some of the items that are a part of Baby’s First Altar (as I jokingly like to call it) alone, so now I have to put certain things out of reach when I know that I’m going to be running errands and he could sneak into my room long enough to… do things that he should not be doing. He is not amused about that, but I am also not amused at the fact that the garbage disposal and some of the pipes leading from it out of the house — not many, thank goodness, but some — had to be removed and cleaned because he stuck things down the garbage disposal thinking that it was funny. We had a long talk about how he needs to leave other people’s belongings alone, not to touch them unless he has been granted permission to do so (and “Baby’s First Altar” does not mean that he has carte blanche permission to muck about with things, especially if doing so means that he can damage them), and to please, please leave the garbage disposal alone, especially because this is not the first time that he has done this. He has a knack for shoving things down it right before he goes to bed, and then it gets used that following morning, and crunch. Why, child?

I am also no longer on the inhaled steroid that was causing me issues because my insurance would not cover the nebulized one that… wasn’t. Instead, we are trying a twice-daily actuated inhalation that also replaces the one that I was nebulizing. Because of the pandemic, we also want me to stay off of prednisone unless I absolutely can not avoid it. So because people, and politicians, could not and can not commit to staying at home to ride this out until it is much less of a concern, we had to make this decision for me. Sigh.

I see my neurologist later on this month, which I am not a fan of. Not only did she upend my prior neurologist’s plan of care for me, but she passively-aggressively charted it in my medical files. If it were easy to change to a new neurologist, I would do so. Depending on how future check-ups go, I may actually consider changing to the pain management clinic in this city and see if they can completely take on my care.

I can finally get prescription sunglasses, everyone!

I found out that I can finally get sunglasses off of Zenni Optical.

This is going to be great for my migraines.

Before, the lens strength only stopped at -6, and my right eye was -6.75 at last checkup, which meant that the lens made would not be strong enough to bring that eye to 20/20 vision. Strangely, they made single vision lenses that weren’t sunglasses in that strength, but… not sunglasses. So after I do get around to getting my eyes checked (I was actually going to do it when the coronavirus hit, and then decided to wait on that), I can get sunglasses in a strength that fits my actual prescription! This means that I can wear them whenever I need to, which should also help cut down on the frequency and severity of my migraines. We hope. They can’t actually hurt them, anyway… and that’s the most major thing. I’ve been looking at some of them on the website (it’s a shame that my pupillary distance is a bit small, or else my first two choices would have worked and would have been great, but it is what it is here, isn’t it?), so I have some picked out in my head that I might like to choose from. I’ll go from there once I get my eyes tested and can also get a new pair of prescription glasses if my prescription has actually changed. But seriously, this is going to be really great!

I think I’m pointing out the really obvious here.

I love the fact that I’ve gone through three neurologists in… how long now? And, of course, I can’t help any of this. One of them didn’t come back from maternity leave as she had originally planned to, and the other one has gone through three different hospital affiliations in a really short period of time, the third of which putting him so far away from me that it was absolutely not worth keeping him as my neurologist (since that would have been an hour and a half commute one way, only being worth it if there was no neurologist at all in this area that took my insurance). This will probably mean that my plan of care will change yet again, because the previous plan of care involved doing an ambulatory EEG at home, and it’s going to make it a lot more difficult to return everything that I need to return if I have to commute twenty minutes to do it — that’s a lot better than an hour and a half one way, but still. Scheduling. Commuting. All of that. Seriously now…

I also continue find it nearly infuriating that Facebook protects, in no particular order, able-bodied, Christian, white-passing men on their platform, and any dissidents against any of those are easily silenced in the form of comment and post blocks for increasing lengths of time. They also seem to like to silence anti-vaxers by making the reporting system incredibly easy to game and will not actually do anything about it to improve the reporting system. The fact that they let a convicted murderer (Jake Eakin) use their site is also concerning, especially because he is known for posting Facebook Lives of him “ministering” in front of facilities like Planned Parenthood buildings, and in 2018 one of them — so I’m assuming that this means all of them? — issued him a trespass order that he continues to violate with stunts like this, video taping staff at one of the facilities, which meant that police had to get involved. Now they seem to be litigating against him, and he continues to “minister” (read that as: scream in front of) them, while they are actively litigating against him. He also posts pictures that are supposed to be graphic and violent of “body parts after abortion” that a lot of people can report that Facebook refuses to take down, but he and his followers can massively report dissidents’ comments on his page and get them silenced no problem. So it’s clear who Facebook protects: someone who will gleefully toe the line, or flat-out break the law, “for the pre-born”, but not people who, you know, don’t actually break the fucking law. Okay. Cool. Make it extremely obvious here.

Also: I think the original massive appeal of Animal Crossing is wearing out, at least for me, just a little bit.

If it’s not one thing here, it is another.

Apparently the new hospital that my neurologist switched to… is no longer the hospital that my neurologist is working at. Or, I guess I should say, my former neurologist. He only worked there for six months (or, if you actually take the time to look at a calendar, less than six months, which makes this whole thing worse) before switching to a new hospital that is far enough away from where I live that it is not even worth getting a referral to continue to see him, because the commute is an hour and a half one way. It would literally only be worth putting the planning, time, and effort into that if there were absolutely no other neurologist in this area which took my Medicaid HMO, which still makes me glad that I switched HMOs when I did because otherwise that might actually have been the case… I can see one of the neurologists that works in the hospital twenty minutes over from this city, which isn’t the most ideal, but it’s a lot better than the alternative of that, let me tell you. I got a call from that hospital yesterday to let me know that my appointment with him had to be canceled for that reason, and to set me up for a visit with one of their neurologists at that hospital.

But seriously, if it’s not one thing it is something else. I’d just like to be able to keep seeing a neurologist…

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