Posts Tagged ‘disability’

Do I do the thing now, or should I wait some?

One of the things that I bought myself with my economic stimulus payment was a manual treadmill that fit within my budget. Along with that, I also got a FitBit Versa Lite from someone who happened to be selling their used tracker on eBay for what was an extremely good price, and I didn’t need all of the bells and whistles that would have come with a Versa 2, so I sprung for that. Although it took me a bit of time to get used to the idea of sleeping with something on my wrist, the transition was surprisingly easy… but I’m attributing this to the fact that wearing the Versa Lite feels more like I’m wearing a slightly snug watch than anything else, and prior models of the FitBit didn’t quite feel like that when they were wrapped around my wrist. Coupled with the fact that this also tells me the time and lets me check the weather (which is good for planning when to do things, making sure that it’s not going to rain on those days), I do have to say that I’m actually a fan of the Versa series. On top of that, this one tracks my oxygen saturations at night… and being an asthmatic, why not be aware of those? Especially because I do tend to have nocturnal symptoms of it…

I’m still deliberating when the best time is to start those virtual races that I mentioned here in this, though. Do I want to acclimate to walking on this treadmill to the point that briskly walking a mile is as easy as it’s ever going to get for me, and then start? Or do I want to start now? I’m not sure. I’ll continue to mull it over.

Since I have not formally amended the list…

Neurological medications:
Lisinopril, 5mg once daily
Olanzapine, 10mg once daily if needed
Promethazine, 25mg once daily if needed
Rosuvastatin, 10mg once daily
Trokendi, 200mg once nightly
Zomig dissolvable melt, 5mg up to three times per week

Respiratory medications:
Albuterol, one vial nebulized up to every four hours as needed
Albuterol, two puffs inhaled up to every four hours as needed
Claritin, standard dose
Singulair, standard dose
Symbicort, two inhalations twice daily

Other medications:
Depo-Provera, taken every ninety days

I went ahead and removed prednisone from this, although I take it if absolutely needed. I’m not “on it” due to the pandemic, because if I am exposed to COVID-19 we want me to be able to fight this off to the best of my ability and it is a potent immunosuppressant (that does have purpose). I also alphabetized the list since Symbicort was above Singulair for some peculiar reason, and albuterol wasn’t alphabetized properly… heh.

Expecting people to “act less disabled” in spaces.

This is the closest that I have come thus far in this entire blog, aside from writing about… various experiences that I have had with attempted religious indoctrination as they relate to Bub’s father’s family, in writing about specific experiences with people, but I felt like they had to be addressed in the way of disability advocacy: the expectation that non-disabled, or sometimes even other disabled, people have in expecting disabled individuals to “tone down the disabled parts of themselves” in general, to “act less disabled” in mixed spaces, and not to talk about the parts of their lives that have to do with their disabilities, even if being disabled “takes up a large part of their lives” and they are proud of being disabled. Like I’ve said, this seems to be something that society does in general, whether it is being done by non-disabled members of society or even disabled members of society who do not feel that they are “as disabled”, who have better passing privilege (the ability to be seen as non-disabled by society if and when they want to be, or simply to “turn off” being seen as disabled to their advantage), or who are not as proud of being disabled as the disabled person in question. I’ve noticed that this intersection can also sometimes occur when the disabled person in question is a member of the disability advocacy community, or “disabled community”, in general.

I do not like having to “tone down the disabled parts of myself”, as I feel that being disabled is an important and integral part of myself. I can not be myself without being disabled, and I should not have to expect to “be the non-disabled part of myself”, because that is a large part of my identity. If I were not disabled, I would not be the person that I am. If me being who I am makes you uncomfortable, that is something that you need to reconcile with yourself. That should not be something that I need to “tone down” in myself to make you more comfortable with me. I should not be expected to “act less disabled” in mixed spaces because there are non-disabled individuals present, because what sort of standard does that set in the era that claims to be all about social justice? Not a very good one, I’m afraid. Disability is not, and should not be, something that you can “turn on and off” to make other people’s lives easier. If that is something that I feel I have to do to make a group of people’s lives easier, maybe I need to consider how much time I spend around that group of people. Me being disabled is simply me being myself. If someone can’t tolerate that or doesn’t like that, then they need to tell me that they can’t tolerate me and that they don’t like me. It’s just that simple.

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