Posts Tagged ‘disability’

Just another day in our house, I guess.

For some reason, Bub has been making it a point to sneak into my room when I’m not in it and take my bookmarks out of the books that I have sitting on my nightstand, and he’s also been making it a point to damage possessions of mine, sometimes even going so far as to throw items of mine at my wall. I am still not sure what is motivating him to actually do this, although we have had several conversations about why he should not do this, and he is not allowed in my room until I am positive that these behaviors are actually going to stop. His response to that was to go into his room and begin slamming his door, slamming it so hard and so often that he might have sprung it. I noticed when I went to get up to check on him and see if I could help him calm down that it wasn’t quite… closing normally, and then opening and closing my own door for comparison kind of confirmed that for me. Right now, it doesn’t seem like it’s anything major, but when he has meltdowns this is something that I definitely have to watch out for. If he starts to make a habit out of slamming his door — which he does for some reason — I have to be prepared to stop him from doing that so he doesn’t damage something, just like I have to be close enough to his bedroom when he’s in there melting down to make sure that he doesn’t kick or punch the door or any of the walls in his room to cause damage…

This is just another day in our household, though. He’s just the kind of kid that has meltdowns, even when his environment is tailored to minimize them. And that it does, but he still has frequent, fairly severe ones.

Current medication list because, well, I can.

Neurological medications:
Lisinopril, 5mg once daily
Olanzapine, 10mg once daily if needed
Promethazine, 25mg once daily if needed
Trokendi, 300mg once nightly (200mg + 100mg pills)
Zomig dissolvable melt, 5mg up to three times per week

Respiratory medications:
Albuterol, two puffs inhaled up to every four hours as needed
Albuterol, one vial nebulized up to every four hours as needed
Claritin, standard dose
Prednisone as prescribed not during the pandemic unless really needed
Symbicort, two inhalations twice daily
Singulair, standard dose

Other medications:
Depo-Provera, taken every ninety days

Like I’ve mentioned, I am going to ask to be taken off of the lisinopril at my next consult with my neurologist because not only am I not seeing anything beneficial from it, but I have begun to gain some weight from it… and I’m going to ask to be put on an antidepressant since the Olanzapine has surprisingly been helping out.

A bit. For me. All of this is comparative because it is me we are mentioning here. I’m not expecting miracles…

Nope, we are not breaking quarantine for this.

Apparently you can “safely exercise” (our governor is a dunce who can’t even comprehend basic science) around here as long as you wear a mask and maintain proper social distance, but no, we are going to continue to quarantine as long as there is a pandemic going on and… not leave the house unless we are embarking on necessary travel. Bub and I could, if there weren’t a pandemic going on, by this logic play Pokemon Go and go to the nearby PokeGym and Stop because it is a cemetery and it is doubtful that we would interact with anyone that isn’t in our household, but… again, there is a global pandemic going on, I am at high risk if I do manage to catch this, I do not want my child catching this, and this is an unnecessary risk to even consider taking, so no. We are going to continue to quarantine for as long as there is a global pandemic going on and I do not care what “advice” our foolish, ludicrous governor, his “strike force team”, or anyone equally as asinine has. None of these folks displays a clear and thorough understanding of science.

I do miss the walk to the nearby cemetery, though. My lungs start off strong after I’ve medicated them with albuterol prior to the walk, then as we turn off of our road and begin walking down the old farm road and I’ve taken the outside position nearest the farm road for safety reasons and my lungs realize what we are doing (again). Then when we get to the gazebo in the cemetery that allows us to access the Gym and the Stop, begin accessing those things, wait for my lungs to stop having the opinions that they are assuredly having, use my inhaler as needed. And when we were done at the cemetery doing everything that we needed to do and I had completely rested, make the walk back down the farm road, then turn and walk back down our road, at which point my lungs would resume having opinions at the distance that we had walked, then go home and I would rest again from the distance that we had walked. My lungs don’t like exercising…

When this pandemic is over, we’ll resume playing Pokemon Go no matter how much albuterol I have to use.

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