Posts Tagged ‘disability’

10
May
2020

I think I’m pointing out the really obvious here.

categories: personal; word count: 476 words

I love the fact that I’ve gone through three neurologists in… how long now? And, of course, I can’t help any of this. One of them didn’t come back from maternity leave as she had originally planned to, and the other one has gone through three different hospital affiliations in a really short period of time, the third of which putting him so far away from me that it was absolutely not worth keeping him as my neurologist (since that would have been an hour and a half commute one way, only being worth it if there was no neurologist at all in this area that took my insurance). This will probably mean that my plan of care will change yet again, because the previous plan of care involved doing an ambulatory EEG at home, and it’s going to make it a lot more difficult to return everything that I need to return if I have to commute twenty minutes to do it — that’s a lot better than an hour and a half one way, but still. Scheduling. Commuting. All of that. Seriously now…

I also continue find it nearly infuriating that Facebook protects, in no particular order, able-bodied, Christian, white-passing men on their platform, and any dissidents against any of those are easily silenced in the form of comment and post blocks for increasing lengths of time. They also seem to like to silence anti-vaxers by making the reporting system incredibly easy to game and will not actually do anything about it to improve the reporting system. The fact that they let a convicted murderer (Jake Eakin) use their site is also concerning, especially because he is known for posting Facebook Lives of him “ministering” in front of facilities like Planned Parenthood buildings, and in 2018 one of them — so I’m assuming that this means all of them? — issued him a trespass order that he continues to violate with stunts like this, video taping staff at one of the facilities, which meant that police had to get involved. Now they seem to be litigating against him, and he continues to “minister” (read that as: scream in front of) them, while they are actively litigating against him. He also posts pictures that are supposed to be graphic and violent of “body parts after abortion” that a lot of people can report that Facebook refuses to take down, but he and his followers can massively report dissidents’ comments on his page and get them silenced no problem. So it’s clear who Facebook protects: someone who will gleefully toe the line, or flat-out break the law, “for the pre-born”, but not people who, you know, don’t actually break the fucking law. Okay. Cool. Make it extremely obvious here.

Also: I think the original massive appeal of Animal Crossing is wearing out, at least for me, just a little bit.

08
May
2020

If it’s not one thing here, it is another.

categories: personal; word count: 247 words

Apparently the new hospital that my neurologist switched to… is no longer the hospital that my neurologist is working at. Or, I guess I should say, my former neurologist. He only worked there for six months (or, if you actually take the time to look at a calendar, less than six months, which makes this whole thing worse) before switching to a new hospital that is far enough away from where I live that it is not even worth getting a referral to continue to see him, because the commute is an hour and a half one way. It would literally only be worth putting the planning, time, and effort into that if there were absolutely no other neurologist in this area which took my Medicaid HMO, which still makes me glad that I switched HMOs when I did because otherwise that might actually have been the case… I can see one of the neurologists that works in the hospital twenty minutes over from this city, which isn’t the most ideal, but it’s a lot better than the alternative of that, let me tell you. I got a call from that hospital yesterday to let me know that my appointment with him had to be canceled for that reason, and to set me up for a visit with one of their neurologists at that hospital.

But seriously, if it’s not one thing it is something else. I’d just like to be able to keep seeing a neurologist…

02
May
2020

Since I have the chance to post before bed…

categories: consoles; word count: 392 words

I would be gaming more if I didn’t have… well, migraines. But the good news is that I see my neurologist at the end of the month to get refills on the medications of mine that need refills, and I tell him which medications of mine are no longer therapeutic and no longer work in the hopes that my medication regimen can be altered to make them more therapeutic. I already know that for reasons that I will be mentioning in this blog later, as soon as we can have it ordered and insurance approves it, I will be wearing an ambulatory EEG — my goal is to wear it “until we catch what we need to catch”, so I’m hoping that insurance actually lets me do that. I’ve never done an ambulatory EEG, and what we need to come up I don’t want to have hide.

I’m hoping that the pandemic doesn’t stall insurance approval of that request, and that my new Medicaid HMO actually approves that request. There’s also the possibility of having another CT scan done with contrast, which my neurologist had been wanting my old Medicaid HMO to do for awhile that they kept arbitrarily denying for the most asinine of reasons even though the first CT scan that was done under my first neurologist actually found something that she (and now, my new neurologist, since she decided not to come back to work after maternity leave) wanted to follow up with… I mean, if the initial CT scan actually found something one might think that insurance would approve a CT scan with contrast to find out more about it, and quite possibly subsequent scans to follow it, but my old Medicaid HMO was arbitrarily denying all subsequent requests for more than the initial scan, which was just absurd. So I guess we will see how this goes if my current neurologist decides to put in a request for another scan, assuming he didn’t give up there.

In the interim, I have noticed that we are actually running low in space on our microSD card, although I don’t want to take that out because our Animal Crossing game is on that and I don’t want to run the risk of corrupting our save data given that we have gotten fairly far in that game. I have heard horror stories…

13
Apr
2020

I need to come up with better titles for these.

categories: personal, RPGs; word count: 387 words

Good news: I am starting to get the hang of the “turnip exchange” in Animal Crossing, so over the course of several days, I actually completely paid off Tom Nook for the first time ever by doing all of the renovations on our house in this game and getting them all done and out of the way. Bub seems to like this game a lot, although he prioritizes certain things over others. I also laid down one of the best bridges in the game (Best Bridge For Bub!) and it should be built tomorrow since I paid the full Bell cost for it. We’ll see how that goes when I boot the game up tomorrow morning and… see whether or not it has actually been built. And so far, on our island there has never been an exceptionally good turnip sale price, so we’ve always been at the mercy of other people’s islands to sell turnips over there. I wish we would, at least once, peak with a good price. I’d probably give our island’s Dodo Code out to good friends of mine to start with before I took advantage of more official sites like the Turnip Exchange, even though I’ve used it myself to travel to other islands with higher turnip sale prices. I’m still getting my feet wet over there with the whole process, because on busier islands it takes awhile what with the whole game pausing whenever someone enters or exits, heh.

People are still panic buying certain things during this pandemic, which has made shopping a bit amusing.

Some of my friends have begun to get the economic stimulus payment (“Coronavirus check”), and we haven’t yet, but I’m waiting to see when we get ours since there’s me and two dependents to be tabulated.

Apparently Social Security re-routed my most recent disability application for a hearing, and this one won’t be held in person due to the distance. I anticipate just plain having to fight them until one of two things happens… I eventually get approved for disability benefits (SSI), or I give up. I don’t want to have to give up.

Chronic, intractable migraines are still my primary disabling diagnosis at present.

I would be doing a lot more (like even playing video games more frequently, seriously) if I didn’t have these.

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