Posts Tagged ‘disability’

Finally getting a leg up on this whole thing.

I found an internal e-mail address for HHSC’s family violence coordination unit that proved to be extremely useful, e-mailed the copy of the good cause form to them that the child support office continued to have on file, and expressed confusion to them about all of the conflicting things I’ve heard from… well, everyone responsible for not working these cases. The individual that I began to correspond with about this over e-mail was as confused as I was why HHSC “lost” the good cause waiver, why anyone was expressing concern that it was for both of my cases, and why the child support office was (or has been) attempting to work the cases. He said that he was looking into it “to see why this was even happening”, so it’s good to finally have someone in my corner who sees all of the confusion in this for precisely what it is: confusion.

If I could work, I would. There are many jobs out there that I would like to do… if I could do them. I made peace with being disabled several years ago, and it was a process. I know my body and I know my limits better than anyone, and I would appreciate it if more people actually respected this in the long term…

Not exactly what I wanted to do out of the gate, but…

So it seems to be set in stone that my insurance is going to continue to deny my pain clinic’s Botox request.

So the doctor that’s been managing my case decided to get an X-ray off of me to see if he could lobby my insurance with it and that I should receive steroid shots to the neck instead. I suppose I’ll be finding out about that soon, whether it’s by a letter sent in the mail letting me know that my doctor’s request was denied, or… I don’t know what. If I can’t have Botox treatments done, I suppose that steroid shots to the neck might be the next best thing. But knowing the luck I’ve had lately, insurance might try to deny that as well.

At the end of the day, I don’t really care as long as it ameliorates migraine pain or makes it more manageable, even if that treatment may have side effects. Right now, I’m reduced to wearing prescription sunglasses in the house to try and make migraine pain… less than, if that makes sense, and that makes navigating around my house a bit tricky. I do what I have to do to get through the day in general, though.

This isn’t cute, and it isn’t funny, so…

This is the new “game” that’s going around to “bring awareness to autism”.

You shouldn’t have liked or commented on my last status. Now you have to pick from one of the below and post it as your status. This is the 2021 Autism Awareness game. Don’t be a spoil sport. Pick your poison from one of these and post it as your status.

Just found a squirrel in my car!
Just used my kids to get out of a speeding ticket.
How do you get rid of foot fungus?
All of my bras are missing!
I think I just accepted a marriage proposal online?!
I’ve decided to stop wearing underwear.
It’s confirmed I’m going to be a mommy/daddy.
Just won a chance audition on America’s got talent!
I’ve been accepted on master chef.
I’m getting a pet monkey!
I just peed myself!
Really thinking about getting butt implants!
Just won 700 on a scratcher!
We’re moving to Vermont at the end of the year!
Mayonnaise on Reese’s peanut butter cups is sooo good!
I’ve just been accepted on come dine with me whoop whoop.

Post with no explanations. Sorry, I fell for it too. Looking forward to your post. Ah don’t ruin it. (Don’t let the secret out). And remember it’s all for the 2021 Autism Awareness. Have fun!”

Please tell me how any of that brings awareness or acceptance to autistic people. I’ll wait.

I am still fighting to get disability, folks.

Even though my disabilities are physical, it is almost always thrown in my face that I am “intelligent, so I can adapt to work”. Okay then, let me know how I can consistently work in spite of nearly blinding pain (or so the saying seems to go). I’ve had to take bursts of prednisone to break migraines that have lasted for days. I’ve had to wear sunglasses in the house to be able to cope with sources of light. But I’m “intelligent, so I can adapt to work”. I think not. The fact that this is even an excuse here just blows my mind in a really bad way.

At any rate, our stimulus check came just before everyone else that I know got theirs, and they actually counted both of my dependents and gave me the correct amount. That blew my mind in a good way. My rule with these is that as long as we don’t need anything that it can buy (since none of us are working and two of us actually get disability checks), I’ll spoil us with them. It’s the least I can do after we put up with Trump for four years. I was actually able to scalp us a PlayStation 5 for a great price given their shortage, and I got us some games that Bub is sure to enjoy. I also got myself some more cyberlox to wear. I mean, really, why not?

Soon I’ll make a list of the things that I’ve spent it on. I think I did that with the past two checks.

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