Protected: It kind of sells itself in the first line, but…
categories: personal; word count: 186 words
Posts Tagged ‘disability’
This is why I am not playing Cyberpunk 2077.
When Cyberpunk 2077 came out, I was initially excited to play the game.
However, that was short-lived when I found out that a certain part of it caused people to have seizures.
I am epileptic myself, although I retain awareness and consciousness during all of my seizures, and I have no involuntary motor movement. Even though I do not appear to be photosensitive, it wasn’t — and isn’t — a risk that I was (am) willing to take, especially if I had a seizure that… laid me out, so to speak. Even though that was almost immediately patched and friends of mine have told me that that section of the game is a lot “tamer”, I still haven’t played our copy of Cyberpunk 2077. I’m waiting for a lot more information to come out about it, especially that part of the game. My seizures feel like something is shocking my brain, like my brain is an egg thrown onto hot concrete, immediately cooking. If I can avoid them, that would just be awesome.
That also reminds me that I would like to write a post all about my epilepsy since why not?
So apparently I have a new diagnosis now, fun.
categories: personal; word count: 184 words
In addition to having chronic, intractable migraines, I have occipital neuralgia now.
This was, as the kids like to say, “sussed out” by the location in which my migraines almost always start. Apparently it’s not a common diagnosis or even a common thing, although I am not surprised to have been diagnosed with… wait for it, something that isn’t common. This would explain why triptans do not really work on me, or they only work a little bit. The pain from occipital neuralgia can not be ameliorated by triptans because that pain is not actually migraine pain, even though I have both diagnoses at present. However, it can be lessened with targeted Botox shots as well as steroid shots along the location in which the nerve travels. I am open to both of these things if they can in any way meaningfully help. My pain management clinic is actually trying to get Botox injections approved for me, so I will see how that goes. It has taken awhile, but apparently these things predictably do. I will just bide my time here and wait, heh.
I mean, I’ve put the effort out here, folks.
categories: personal; word count: 274 words
Soon I may be able to get the flu shot, which is useful even coming up to early February.
Key word, though: soon. And possibly, since taking prednisone for asthma contraindicates me while I am actively on it and for four full weeks after the date of last dose. Over the course of this pandemic I have honestly tried as hard as I could to stay off of prednisone, and I have had varying degrees of success depending on where in the year we have been at. I have certainly put substantially more effort into this.
If I can stay off of prednisone for more than four weeks, I may also be able to get the COVID-19 shot expedited due to the severity of my asthma since I’ve been told that I fall under one of the classes required to get it sooner than the general adult population… 1B, or something to that effect. I’m willing to get all recommended vaccines as long as I can tolerate them in that I am not, for whatever reason, contraindicated from them. Almost everyone else that I know is current on all of their vaccinations, at least the recommended ones, so I feel somewhat confident being protected by herd immunity… even though I’m aware that as various people enter my “bubble” when I do have to leave the house that they, for whatever reason, may not be up to date on their vaccines. I consider it a blessing that all I have to get is the annual flu shot and, whenever I am able to, the COVID-19 vaccination. Looking at you really hard right now here, prednisone.