Posts Tagged ‘disability’

I am still fighting to get disability, folks.

Even though my disabilities are physical, it is almost always thrown in my face that I am “intelligent, so I can adapt to work”. Okay then, let me know how I can consistently work in spite of nearly blinding pain (or so the saying seems to go). I’ve had to take bursts of prednisone to break migraines that have lasted for days. I’ve had to wear sunglasses in the house to be able to cope with sources of light. But I’m “intelligent, so I can adapt to work”. I think not. The fact that this is even an excuse here just blows my mind in a really bad way.

At any rate, our stimulus check came just before everyone else that I know got theirs, and they actually counted both of my dependents and gave me the correct amount. That blew my mind in a good way. My rule with these is that as long as we don’t need anything that it can buy (since none of us are working and two of us actually get disability checks), I’ll spoil us with them. It’s the least I can do after we put up with Trump for four years. I was actually able to scalp us a PlayStation 5 for a great price given their shortage, and I got us some games that Bub is sure to enjoy. I also got myself some more cyberlox to wear. I mean, really, why not?

Soon I’ll make a list of the things that I’ve spent it on. I think I did that with the past two checks.

Should this really surprise anyone at this point?

I’ve had to abort two separate migraine headaches now with prednisone… the wrecking ball.

Surprisingly, this doesn’t work extremely well on my lungs any more, but it does work reasonably well on my migraines, helping me restore some semblance of normalcy to my life after I’ve literally tried everything else at my arsenal. Since my insurance rejected my pain management clinic’s request for me to start Botox treatments to the tune of us having to play around with them appealing that, I’m going to ask about starting prednisone “long-term”, either every day or every other day, in the interim as we fight insurance for Botox…

I’m well aware of the side effects of prednisone, having needed it for my asthma as much as I have in the past. But there are days when I don’t want to be confined to bed (or extremely close to that), not being able to do much of anything or what I really want to do that day, so if that means literally sucking it up and starting oral steroid treatment for my migraines, I am amenable, moon face and weight gain be damned.

I need to come up with better subject lines.

I need my optometrist to… do whatever it is that they have to do to continue seeing me as a patient, because apparently the whole thing changed hands and they have to recertify with each of the major insurance providers that they had formerly certified with, or however you actually word that. I’ve been meaning to get my eyes tested for months, but this has been the one monkey wrench in the plan. I’m pretty sure that I am no longer seeing 20/20 with my glasses, finding it more difficult to see what’s on my computer screen and having to squint at it with glasses on some of the time. And I’m not even on prednisone right now, either!

I’m still waiting to hear back on whether or not my insurance has approved Botox treatments for my migraines, or even steroid shots since my new diagnosis will allow those. But since my last visit with my pain management clinic was a TeleHealth consult because of the severe winter storms that hit around here at this time last month, I… don’t exactly have the highest of hopes that this will come through before I’m actually the skeleton from the skeleton meme. I would have asked about it then, but it was the nurse practitioner who did the TeleHealth consult with me, and she has to consult with the doctor before she can make any changes to my treatment plan… or sometimes even answer a whole lot of in-depth questions that she may not initially, or originally, have the answers to. So I’m content, or as content as I can be, to wait until my next visit to inquire about that. Ideally, I am approved for both of them and we just go on from there…

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