Posts Tagged ‘disability’

I surprised myself but I did it and I’m stoked.

A few people on the second Discord server that I joined began posting flashers in main chat, joking about “making me convulse”, and one of them had the gall to talk about how they didn’t want to get out of bed, so they were going to… take it out on other people. They didn’t want to get out of bed, so they were going to… do things that had a high risk of harming people in real life. If I actually do have seizures back-to-back in real life, this could kill me, but I don’t expect nor do I trust these people to care about the health or lives of other people at this point and I sure don’t trust them to handle doing any research on it. So I’ve decided to institute a “zero strikes and you are permanently out” policy when it comes to this sort of thing. If you know that I am epileptic and you do this, I am kicking you out of my life for the rest of your life or the rest of my life. We are no longer friends. We will never be friends. There is absolutely nothing that you can ever do to get me to forgive you. Deal with it. If you know that I am epileptic and you comment on how that will “make me convulse” as you do it, the same principle applies. I can, and I will, hold a grudge for forty years if your actions seek to hurt me in real life. Again, deal with it. Find a way to deal with it. I have faith that you can.

At any rate, these were actions that you consciously meant to take. I may have grown up with a lot of these people, but it doesn’t mean that I have to continue being in the lives of the majority of them or participating in their Discord servers or communities when their acts maliciously hurt other people… and that’s what I’ve decided exactly what not to do. I quit all of the Discord servers that these people are on or participate in even though I do think a handful of them are good people, and I don’t mind reconnecting with a handful of them, because I don’t want to be exposed to this level of drama and vitriol. I don’t want to be exposed to people who will maliciously hurt other people like this, or people who want to maliciously hurt other people like this, and I do not intend to go back on this given any circumstances. I do intend on continuing to converse with, and maintain connections with, the individual people that I have reconnected with who I do enjoy talking to and being in the lives of, but this does not hold true for the majority of them and I will not be giving “the majority” as a whole a second chance. As it is, when the pandemic finally becomes endemic (or when the pandemics finally become endemics… or in the case of monkeypox, stop, I guess I should say), this will make it that much easier for me to be around less and not have various people questioning where I am.

If you flash memes one time on purpose I’m now out.

Me for four days: I wish I could sleep easily. It’s hard to go to sleep.
Me on the fifth day: zzz

That went well.

Anyway, I am one Discord server down (the order of these surprised me, like I didn’t expect this one to be first… but I’m going to hold grudges if people are going to post flashers in main chat knowing that epileptic people are actively chatting and trying to participate, and that’s just the top of the list for me). I’m getting used to the pace of the Discord server that I’d been invited to, that I thought might be a bit overwhelming for me at first, but not throwing myself into it seems to be helping. I try only to update people on seizures once I am well into the postical period of them or if that has passed because I don’t want people to unnecessarily worry about me… I mean, unless they caused what happened and should. But I’ve been man down for a few days, so to speak. I’m having migraines that are completely refractory to my standard medication, which sometimes happens. It is what it is and I’m getting over it because I have to get over it to keep going on

Still, I don’t care how much you claim to dislike a person, doing something to risk a seizure is not alright.

I hate being infantilized when I disclose autism.

The title is the biggest banger of all in this post and should pretty much say everything.

What about autism makes people think that it’s a child’s disorder, that only children can have it? These children inevitably do grow up and become adults. More and more adults are getting diagnosed autistic because they have children or family members who are or have (and sometimes significant others who go “hey, I see a lot of myself in you, maybe you’re…”). If I want accommodations, or for people to understand how I am the way I am, it’s best for me to disclose that I am autistic. But if I disclose that I am autistic, some people treat me like I am inferior to them, like I know less than them, or like I’m a child when I am not. They act like I have greater access needs and barriers than I do, and sometimes they do these things in really obvious ways which frustrates me if not infuriates me depending on how they do it. It’s just really frustrating.

Like… don’t get me wrong. I’ve always wondered why my mind seemed to operate differently from that of those around me, so to be diagnosed autistic did not come as a surprise to me at all. Some of my friends who are autistic adults actually told me that they knew I would be diagnosed autistic before I was actually diagnosed on paper. But it seems like adults who aren’t autistic don’t always treat autistic adults with the respect that they deserve as human beings, and that’s got to go before 2030, I swear. I’m that impatient.

A whole bunch of things crammed into one post.

First things first: I’m waiting for my migraines to begin to improve. So yeah, still waiting on that one. During the radiofrequency ablation (RFA) that was done on the right side of my head, the technician accidentally pierced the nerve with the shot meant to numb it rather than injected the lidocaine beside it… and that was a ten-out-of-ten banger until he could sufficiently numb up that entire side of my head, and I mean that in the worst possible way. I know that it was a mistake and that these things just happen some of the time, so I’m not mad at him for what was clearly a simple mistake. It just means that I have to wait a little while longer until the pain on that side of my head is ameliorated, assuming that it even ameliorates at all. We’ll see…

Secondly: The terms “abandonware” and “fair use act” do not mean what certain people think they mean, or what certain people have been deluding themselves into thinking that they mean. I’ve been in correspondence with the copyright holder of… one such entity (although you could also call them the owner of the intellectual property in question, and that wouldn’t be wrong either), and not only have these contacts clarified some information for me — namely that you can not claim that something is abandonware because it is the older version of a current program, and accepting money for any reason as part of this project means that you are profiting off of someone else’s work — but have solidified the fact that I am not going to participate in any projects that are not iron-clad in their legality. If this means that I do not participate in any more “projects” like this any more, so be it. I’d rather not take unnecessary risk here, especially as a streamer.

Can I have some pain medication for this, please?

So I was finally able to get radiofrequency ablation done on the other side of my head. The only downside to that was the technician accidentally injecting the nerve itself with the numbing agent and the steroid rather than the space beside it, which meant that he had to go back in and numb up the pain that he caused the nerve by injecting it with… well, anything, because injecting a nerve with a needle to begin with is going to hurt. As the pain relief and steroid injections have worn off, I have come to be able to feel that side of my head again… to include where the nerve in question was literally poked by the needle (which was not fun, is not fun, and will not be fun for awhile, I suspect) and have not been able to turn my head to varying degrees of the right side. I’m well aware that to start to feel better from these things, you have to get over the hurdle of the nerve feeling really uncomfortable as it realizes you tried to scramble it… but one of my nerves accidentally got poked with a needle, so I’ve been taking pain medication as appropriate to counter that.

Fun times, said no one! And I fully do intend on getting back to streaming once I feel better from this, and once I stop having migraines every single day because that is the place that we are now at. Either that or I need to find better ways of coping with this level of frequency and intensity although I dislike doing so…

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