Archive of ‘personal’ category

They want you to die so they don’t have to pay.

Soon, I will have a hearing with an administrative law judge to see if I can get approved for disability benefits… again. I’ve been told by friends of mine who are more familiar with the process (yes, the process) that the best thing to do is to put in applications, and advance them to hearings, until I am eventually approved, because Social Security wants people to give up and stop applying for benefits even though they are disabled and should not have to fight as hard as many of them do to receive benefits that they are otherwise entitled to. To make it easier on myself, I’ve begun to keep notes on my computer to remind myself of things that I want to say at my hearing even though it will be over the phone due to this pandemic. This is the same judge who has already denied me once when I put in an application for disability with my asthma as my primary disabling diagnosis… now, at the advice of my second neurologist, I’ve put in an application with chronic, intractable migraine disorder as my primary disabling diagnosis. If she remembers me, which she may, she will probably find some reason to deny me. I’m willing to play the game of putting in applications until I am eventually approved, as one of my friends’ mothers had to advance applications to a hearing four separate times to get them approved for disability benefits when they were a child on something that should not even have had to go to a hearing… that was how obvious this disabling impairment should have been to Social Security when their mother applied for them, but I digress. Seriously.

Another one of my friends said that they “deny, deny, deny” hoping that you pass away for people whose disabling conditions run the risk of death so that they do not have to pay out on any benefits. And I mean, I can get behind the deny, deny, deny part since that’s been what has been happening to me right now. I’ve been getting contradictory reasons for denial on my migraine diagnosis alone. Personally, I’m still trying to figure out how someone with between fifteen and twenty “migraine days” (yes, days) lasting between four and twelve hours who can’t even engage in hobbies that she wants to engage in to the extent that she wants to engage in them in can work, but whatever. Maybe if I keep putting in applications they’ll get it…

“You’re intelligent, so you can adapt to work”.

· I have between fifteen and twenty days of migraine activity per month on average
· a lot of this has to do with how aggressively I avoid triggers, or how aggressively I can
· many of these come with nausea, which has to be worked around because… well, nausea
· wearing sunglasses when indoors does help, but this limits my vision as a result of doing so
· even being adherent to various maintenance medications, I still have at least fifteen “migraine days”

But yes. Anyone who thinks that I can “adapt to work” in spite of the migraines alone are deluding themselves. There are still people out there that actually think that I can hold down any “normal” job with the frequency and severity of migraines that I have when I can’t even indulge in video games on my off time to the extent that I would like. I have to meticulously plan out doing so around my already existing “migraine schedule” and the amount of medication that I have available to give myself at any one time, and I can not play for extended periods of time. If this is affecting what is probably my favorite hobby at this point, it is bound to affect my ability to find and keep a job. It still blows my mind that some people refuse to see this.

If I can find a job that I can do that “pays all of the bills”, I’d seriously jump on that in a second though…

If it’s not one thing, it’s definitely another…

I think the charger for my FitBit… doesn’t exactly work as intended.

I have to hold it against the back of the Versa to get it to continue to charge, which kind of defeats the purpose of “set it and forget (about) it until it’s done charging”. Although I’m thankful that it works in terms of continuing to be able to charge it, I may replace the charger. And the strange thing was that the charger worked fine when I first began to use it, but for some strange reason as I continued using it as needed, that was when it worked less effectively, then not unless I firmly held the Versa to the charger… it’s one of those that the device “nestles in”, where you snap it inside of the charger and something on the front of it holds it to pins on the back where the charging actually takes place, if any of that makes sense. If only these devices weren’t so confusing, and if only these devices didn’t all come with their own individual charger that wasn’t compatible with anything else except for that individual device. That’s a long-standing pet peeve of mine…

Bub actually had another “act of God” with his AAC device, so that had to be sent back to the company that furnishes these for repairs. The screen is sturdy, but it’s not impenetrable, and he insists on taking the keyguard off of the device and hiding it in the house. Why he does this, I do not know. I don’t think he would have broken the screen on the device like he did if he had left the keyguard on, and no amount of trying to explain to him why he needs to leave the device’s keyguard on the device has even remotely been effective.

The good thing is that his insurance fully covers necessary repairs on it since it is his communicative device.

As I write this, I have the background music from Kickle Cubicle playing in my head for some strange reason.

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