Posts Tagged ‘life’

Post-sepsis syndrome is a rollercoaster, folks.

It is definitely not a rollercoaster I want to be on, but here we are.

This happens sometimes, and if you get what I mean, I want it to… stop happening.

With the supplementary medication that I was prescribed after my discharge from the hospital, there have been times where I’ve felt pretty good. There have also been times where I’ve crashed, and where I spend time (since it’s the weekend and all) napping in my bed hoping that this ameliorates. But I know that if I feel worse, or that if I keep feeling worse, to head back up to the hospital… you know, the one that tried to bill me as CPR was being administered on me and I was being paddled and shocked back to life and back to sinus rhythm. Luckily for me I have a great support system that is willing to help me out as I recuperate and get back to health, and I’m thankful for that. I just want these symptoms to stop so that I can get back to my life, get back to doing the things that I love, and spend more time with my kids. Right now, I’ve been spending a bit less time with them because I don’t want them to see me sick and weak, which my support team agrees is completely acceptable. Everyone’s emphasis is on me getting better and me getting back to, well, me…

I managed to pick up the… parcel that I was supposed to pick up while I had pain medication in my system.

This shouldn’t have happened, but here we are.

The post office was supposed to deliver my son’s necklace, the one that has his dead father’s ashes in it, lied, and said that there was no authorized recipient home. This was bullshit, and I’m about to get into why.

I made a nice, wonderful call to… I’m guessing the federal agency that’s supposed to deal with this, and I explain that this is not the first time my mailman has not delivered packages with guaranteed delivery dates on time, but that it was profoundly annoying because this parcel has my son’s necklace in it (you know, the one with his father’s ashes), and a baggie with some more ashes in it because I expressed interest in getting a ring made for myself and getting a tattoo with his ashes infused in it. The representative that I spoke to was nice enough to file a complaint against the mailman because this should never have happened, and I get to go down to the post office downtown (the “main post office”) and pick up the parcel that was supposed to be delivered to my house today. Nothing was left on my front door about a missed package, and nothing was left in my mailbox about a missed package. Nothing. The mailman scanned the parcel and claimed that there was no one available to sign for it, which was a lie because two adults in my home were home at the time the rest of the mail was deposited in our mailbox. And given that this has happened more than once, I honestly hope that he loses his job for it. I don’t want to keep dealing with “missed packages”.

This is a backdated post because I forgot to write…

Post-sepsis syndrome is a very real thing, and it’s one that I am suffering from.

For me, the main problems are an inability to modulate my temperature, more migraines, and feeling tired, but I am very grateful that I was able to be brought back. At some point I’d like to write about the whole… process of that in as tender a manner I can manage because I feel like it should be written about. I’ve been wanting to resume streaming, and to stream more, but I’ve been exhausted. Apparently this is common when you have sepsis, and when you’re brought back to life for any reason, so I’ll just have to deal with it.

That didn’t take half the time I thought it would.

It’s been fun setting up the survivor’s benefits that my oldest son is due from his father’s death, but the fact that I can never expect him to at least try to reach out to our son because he is dead is becoming… more and more of a thing. I found out that my application for benefits for him had been approved and got the award letter that comes with it before I had even been sent a copy of the information that I provided Social Security with, which wasn’t even the most surprising part. The surprising part of all of this is the fact that my son is due to get $933 a month off of the work record that someone else had, that we didn’t even know about — almost all of his family members, not to mention so many of his childhood friends, thought that his criminal record would have precluded my son even being eligible for survivor’s benefits in the first place, let alone at this amount. And I don’t think any of us will know the kinds of jobs that he must have held in the years and months leading up to his death, although it’s become increasingly more apparent to me that any place of work he must have had would have had to figure out his death the hard way, because none of us knew his current address, his place of work, even the types of jobs he was working. The fact he died was a surprise.

There’s just so much that we didn’t know about him that we won’t ever know about him. I’m fine with that.

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