Posts Tagged ‘disability’

We are on day three of what, the flu now?

So, while I’m sick, I’m going to say this in a place where everyone can hear it.

Every time I have an episode of epilepsy I’m reminded of the person who gave this to me. My Apple Watch has been recording brief episodes of apnea that resolve. My son’s father “loved” me enough to do this to me, and by that I mean didn’t love me at all because all he was capable of was hurting me, and I have to deal with that hurt for the rest of my life. That’s some kind of love, isn’t it? Sometimes I stop breathing in my sleep and other times I hit the floor during a seizure. He hurt me and then he had the nerve to say I “broke his heart” when I took our son and ran from him because I didn’t want to continue to be hurt. I shouldn’t be going through any of this to begin with. Who taught you to love in the first place? You disabled me. Have a very nice the rest of your fucking life and never contact us again..I want absolutely no part of your love.

This state is still not my problem, but… nice, I guess.

Apparently when you file a complaint with the Department of Agriculture about how long SNAP cases are taking to be worked in your state (and the unprofessionalism that came with constant copies and pastes of irrelevant information by the HHS Ombudsman’s office when I attempted to file complaints with them most of the time, which only goes to further prove my point), they expedite working your case — I got a call from someone at the local office last night when I had ironically been hunting for the word office in my mind to continue to post about these people, and they told me that not only would my family continue to be eligible for benefits for the next six months but that our benefits would increase to the tune of something like thirty dollars each month, and they apologized for how long it had taken to get to my family’s completed renewal to begin with. I kept my mouth closed but did not accept the apology, as our benefits would not even have been renewed in the first place in anything remotely resembling a timely manner if I had not constantly complained about Texas HHSC, let alone continued to post on their Facebook and Twitter pages about how they were incapable of doing their jobs. This is a hollow victory given how much effort had to be put into it.

For those who aren’t following along with this…

I put in my family’s completed renewal for SNAP benefits on December 2nd, which was the day that the state website let me fill the renewal out to start with. Me finishing these things quickly is par for the course.

At the time of this post, it is January 9th. It has been more than a month since I put this application in, and absolutely nothing has been done about it. The state can sure make time to respond to complaints that I make about it on the HHS Ombudsman’s website, as can they make time to give me three or four different answers to queries when I call the state information help line, the HHS Ombudsman, or they call me (more than once). Because of the utter incompetence of all of this, I’ve resumed filing regular complaints about the handling of my family’s SNAP case on the HHS Ombudsman’s website, although I honestly do expect these complaints and all of my queries to start getting ignored at some point as the state of Texas continues to refuse to deal with whatever problem is causing this. Should my family’s benefits actually lapse because of inaction of the state, I won’t hesitate to contact Legal Aid, and I won’t hesitate to contact whoever I need to contact in the Department of Agriculture to let them know in as much detail as I can provide about how taxpayer money is going unspent — or being misused by the state — while eligible Texans are being denied benefits because of the state’s refusal to process, or look at, applications and renewals for those benefits.

If we lose benefits in February as a result of willful state inaction, I’ll swiftly contact the two named agencies.

Well, now I’m feeling a little bit better, but…

I’m not sure… what it has been about these antibiotics and me aside from the fact that my symptoms, coming on as suddenly as they did, were indicative of sensitization to doxycycline and sensitization to tetracyclines as we know them to be, but I began having symptoms that weren’t quite “why would I develop an allergy to a medication I’ve randomly needed to take since childhood” that were still really concerning in light of my health history, so I finished the rest of the IV treatment for cellulitis at the local hospital, given other medications through IV line as well for nausea, stomach pain, and allergens in case this has just been a really wild ride with doxycycline. It’s actually safer now for me to do antibiotics by IV at the local hospital, much as I despise these people (and may accordingly transfer care over elsewhere, one [smaller] town over) because I can be preloaded with antihistamines and even steroids if needed so that I don’t continue to have these reactions. And I will make all the time in the world I have to if that means that I have less, or no, reactions to these medications when I need them… especially if any untoward side effects can be managed.

This is my favorite song from the 2002 movie Carrie.

I just recently found this on YouTube and it. is. my. jam, all while I am sick from taking the doxycycline that I was prescribed for the bite that I’ve been talking about. I’ve been taking Benadryl and fever medication for that in the hopes that it brings down symptoms until this leaves my body, but hard telling on when that will be. If this continues I’ll contact my care team later this week and, if needed, I’ll go to the emergency room.

I like this meme, so I’m adding it in here.

Since I was… bitten during the first bad meltdown Bub has had in more than two years, my doctor wanted to refer me to wound care to have them take a look at and manage it due to my history of immunosuppression and fluctuating blood sugar levels due to the medications that I’m on and have been on. This did not surprise me one bit. I’d like some of the bandages that they give me because those will stick to the bite wound and offer me some relief. And as stated in previous posts, I managed to sprain my ankle something fierce rolling on it after I got out of bed not even remotely fully awake from a nap — lesson learned, I suppose. I was prescribed some pain medication to make the bite wound hurt less and to make it possible for me to bear enough weight on my foot to ambulate around the house better than I had been (my goal). Goal achieved.

It doesn’t alter my mental status at all, though. Some people… have that happen when they take certain pain medication, and I am evidently not one of them. I’ve never been one of them. I’m still figuring out why that is.

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