Posts Tagged ‘disability’

Hey, remember the whole “heart problems” thing?

Now that I am finally no longer coughing due to the medication that I was supposedly placed on for this (which doesn’t mean that it was successful, as I shouldn’t have been placed on it to begin with given my health history), I have edema in my leg that has gotten progressively worse and begun to creep further and further up said leg. Even though I’ve had transient periods of edema in the past, none of them have been quite like this — I’m not able to wear any of the pairs of shoes that I own because of this, excepting the pair of CLOAK Slipps that I’ve owned for… ever now, forever now, and getting that on my foot has been a fight.

I’m going to be calling my primary care physician (doctor? physician?) in a few days, hoping that I’m finally able to get through to them because… that’s always been fun, and I’m going to ask about the status of the cardiology referral that was supposed to be sent out. I’m also going to ask for a refill on the medication that I was put on if they don’t want to change it before I see that doctor, and see what needs to be done about my leg. I can almost not bend it at the ankle, and it’s getting to the point where bending it at the knee — or even sitting on that leg, which I do some of the time — has gotten increasingly more awkward. I know that, given my family and health history, the edema is most likely to be caused by… wait for it, the heart problems that have been inheritable on that side of the family. I just want to be able to stand, walk, and use this leg without concern, and this is getting more and more annoying (with the leg less usable) as time goes on.

That was a nice time-traveling experiment… not.

As I prepare to resume streaming, I’m noticing a modest uptake in the amount of seizures I have.

This appears to be something that I am just going to have to deal with and work around. Almost all of them occur during the night, but I always have an aura with them (or a period of time that I feel like absolute shit and proceed to wonder about the cause or causes of instead of going right to my medical history on the first try). And I am on medication for them. My care team is obviously aware of them. As long as they stay within the parameters of the predictable patterns they’ve been having, there’s no need for anyone to panic or be concerned about my health… even though I know that my friends, being my friends, may at least worry a bit.

Still, at the moment, it is ironic in a screwed up way. I had reorganized the gaming computer’s desk and was neatening the wires when it happened and I blacked out, and when I came to I’d thought that only a few minutes had passed. No, it was 4:03AM in the morning. I’d gotten sleep before that taking naps as I am wont to during the day when I feel tired or… like something may happen, so my “sleep debt” isn’t that bad now…

I’m wondering if a medication I take to help me fall and stay asleep may help lessen the seizures I have?

I got a whole lot of nice pictures of Bub.

Meanwhile, I am coughing much less than I had been… but I did cough to the point where I did something to one of my ribs over on my left side. I’ve been taking cough and pain medication as needed. I’m hoping that it’s nothing more than injury to the muscle and not injury to the actual bone. That would somehow be me…

At any rate, Bub did well! He is taller than me, but that is an absolute no-brainer as I am just under five feet tall. Every adult but one of them is, and has been, taller than me. It’s a rite of passage and is a fact of life.

Stuff. Things. Lots of stuff with lots of things.

The coughing from the beta blocker has all but gone away! That’s the good part of this post, anyway.

The bad news (or news that is supposed to be bad, anyway) seems to be that the beta blocker is no longer working to bring down my blood pressure and pulse, although I am fortunate in that I don’t feel the squeezing of the chest sensations that I did leading up to seeking care for it. One can hope that I’m able to get in to see the cardiologist in a few weeks, I’m taken off of metoprolol anyway — even though I can finally spell metoprolol now — and am put on something better that works better that doesn’t risk making my albuterol not work or cause other tremendously unwanted side effects. (And coughing for weeks to the point that one has effectively lost their voice for around a week counts as a tremendously unwanted side effect.)

Bub has his thirteenth well visit with the pediatrician today, and then we have less appointments for awhile!

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