Posts Tagged ‘disability’

“You’re intelligent, so you can adapt to work”.

· I have between fifteen and twenty days of migraine activity per month on average
· a lot of this has to do with how aggressively I avoid triggers, or how aggressively I can
· many of these come with nausea, which has to be worked around because… well, nausea
· wearing sunglasses when indoors does help, but this limits my vision as a result of doing so
· even being adherent to various maintenance medications, I still have at least fifteen “migraine days”

But yes. Anyone who thinks that I can “adapt to work” in spite of the migraines alone are deluding themselves. There are still people out there that actually think that I can hold down any “normal” job with the frequency and severity of migraines that I have when I can’t even indulge in video games on my off time to the extent that I would like. I have to meticulously plan out doing so around my already existing “migraine schedule” and the amount of medication that I have available to give myself at any one time, and I can not play for extended periods of time. If this is affecting what is probably my favorite hobby at this point, it is bound to affect my ability to find and keep a job. It still blows my mind that some people refuse to see this.

If I can find a job that I can do that “pays all of the bills”, I’d seriously jump on that in a second though…

Do I do the thing now, or should I wait some?

One of the things that I bought myself with my economic stimulus payment was a manual treadmill that fit within my budget. Along with that, I also got a FitBit Versa Lite from someone who happened to be selling their used tracker on eBay for what was an extremely good price, and I didn’t need all of the bells and whistles that would have come with a Versa 2, so I sprung for that. Although it took me a bit of time to get used to the idea of sleeping with something on my wrist, the transition was surprisingly easy… but I’m attributing this to the fact that wearing the Versa Lite feels more like I’m wearing a slightly snug watch than anything else, and prior models of the FitBit didn’t quite feel like that when they were wrapped around my wrist. Coupled with the fact that this also tells me the time and lets me check the weather (which is good for planning when to do things, making sure that it’s not going to rain on those days), I do have to say that I’m actually a fan of the Versa series. On top of that, this one tracks my oxygen saturations at night… and being an asthmatic, why not be aware of those? Especially because I do tend to have nocturnal symptoms of it…

I’m still deliberating when the best time is to start those virtual races that I mentioned here in this, though. Do I want to acclimate to walking on this treadmill to the point that briskly walking a mile is as easy as it’s ever going to get for me, and then start? Or do I want to start now? I’m not sure. I’ll continue to mull it over.

Since I have not formally amended the list…

Neurological medications:
Lisinopril, 5mg once daily
Olanzapine, 10mg once daily if needed
Promethazine, 25mg once daily if needed
Rosuvastatin, 10mg once daily
Trokendi, 200mg once nightly
Zomig dissolvable melt, 5mg up to three times per week

Respiratory medications:
Albuterol, one vial nebulized up to every four hours as needed
Albuterol, two puffs inhaled up to every four hours as needed
Claritin, standard dose
Singulair, standard dose
Symbicort, two inhalations twice daily

Other medications:
Depo-Provera, taken every ninety days

I went ahead and removed prednisone from this, although I take it if absolutely needed. I’m not “on it” due to the pandemic, because if I am exposed to COVID-19 we want me to be able to fight this off to the best of my ability and it is a potent immunosuppressant (that does have purpose). I also alphabetized the list since Symbicort was above Singulair for some peculiar reason, and albuterol wasn’t alphabetized properly… heh.

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