Posts Tagged ‘disability’

I still need to come up with better subjects…

I’ve decided not to walk every single day on my treadmill, because my lungs aren’t acclimating to it as fast as I thought they would… for someone who went into this knowing that it would take them awhile to get used to exercising anyway, especially with the severity of asthma that I have. Some people have told me that “if I keep at it”, “it” being exercise, that my body and lungs will “get used to it”, and that’s how I’ll get fit and have better lung function… but in spite of almost literally trying this six ways from Sunday, I’m not seeing those results, so I’m going out on a limb here and speculating that those people are understating the frequency and severity of my asthma. For some reason, that seems to be something that happens. People think they can make the most “helpful” suggestions, and then when those suggestions don’t work, it’s like it is a personal offense to them. And it’s not as though I don’t tell these very same people that I have asthma.

For some reason, our copy of The Sims 4 on the PC isn’t quite working as it should. Several panes on the ground are purple and have “?” in them, and Sims are literally getting stuck ridiculously easily. I’ve tried the fix where you manually unstick them (“ResetSim”), but then they get stuck all over again… and no, I’m not running any mods. Hopefully repairing the whole thing through Origin works, because everything else on this computer works just fine and I had to fight like hell to get everything else on this computer to work just fine.

The state of affairs is clearly a lot of opinions.

Good news: My gum infection hasn’t managed to spread any further, and is currently being… managed, for lack of a better way to put it. Come to find out that being on the amount of medication that I’ve been on for asthma has more or less always irritated my gums, but now it’s become a bit more noticeable to me. However, brushing my teeth at the frequency that I have and using mouthwash as liberally as I have (“the purple kind”, too) has only helped matters out. My gums do not like the current state of affairs of anything.

However, the prognosis is better than I had originally thought it was, which is comforting.

Not-quite-so-good news: I’m not managing to stay off of prednisone during this pandemic, although I am making a considerably more concerted effort to do so. If I could stay off of prednisone long-term, that would be great, but that is not where we are at right now, and I suppose that has a lot to do with why my gums do not like the current state of affairs of anything. (Symbicort does as well.) My lungs are having as many opinions on issues as my gums are, although those are more noticeable because lungs are larger than gums and they are my lungs. I’ve also grown weary of explaining to people why certain groups of people can, and should, wear masks with exhale valves… you know, the ones who will not have asymptomatic periods if they are exposed to COVID-19 and actually catch it, who need to be protected from catching the virus more than they need to protect others from catching it from them, but I digress here, I do. It’s a lot of complex science…

Bub now has Super Mario 3D All-Stars, and I’ve pre-ordered Cyberpunk 2077! Two worthwhile purchases.

They want you to die so they don’t have to pay.

Soon, I will have a hearing with an administrative law judge to see if I can get approved for disability benefits… again. I’ve been told by friends of mine who are more familiar with the process (yes, the process) that the best thing to do is to put in applications, and advance them to hearings, until I am eventually approved, because Social Security wants people to give up and stop applying for benefits even though they are disabled and should not have to fight as hard as many of them do to receive benefits that they are otherwise entitled to. To make it easier on myself, I’ve begun to keep notes on my computer to remind myself of things that I want to say at my hearing even though it will be over the phone due to this pandemic. This is the same judge who has already denied me once when I put in an application for disability with my asthma as my primary disabling diagnosis… now, at the advice of my second neurologist, I’ve put in an application with chronic, intractable migraine disorder as my primary disabling diagnosis. If she remembers me, which she may, she will probably find some reason to deny me. I’m willing to play the game of putting in applications until I am eventually approved, as one of my friends’ mothers had to advance applications to a hearing four separate times to get them approved for disability benefits when they were a child on something that should not even have had to go to a hearing… that was how obvious this disabling impairment should have been to Social Security when their mother applied for them, but I digress. Seriously.

Another one of my friends said that they “deny, deny, deny” hoping that you pass away for people whose disabling conditions run the risk of death so that they do not have to pay out on any benefits. And I mean, I can get behind the deny, deny, deny part since that’s been what has been happening to me right now. I’ve been getting contradictory reasons for denial on my migraine diagnosis alone. Personally, I’m still trying to figure out how someone with between fifteen and twenty “migraine days” (yes, days) lasting between four and twelve hours who can’t even engage in hobbies that she wants to engage in to the extent that she wants to engage in them in can work, but whatever. Maybe if I keep putting in applications they’ll get it…

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