Posts Tagged ‘disability’

This is not where we need to be at, fam.

Captain’s log, day 6,666: the right side of my jaw began to swell and hurt. Took prednisone. Hate prednisone. But I’m feeling better. Am still not sure why that happened in the first place but hey…

This month’s appointment with the pain management clinic that I attend did not go well. For some reason I was prescribed less of the pain management medication that works (Fioricet), and I was prescribed… a copious amount of muscle relaxers. I was prescribed these years ago in conjunction with Fioricet and I felt like they helped, but that is not the case this time, so I’ve been (self-ownership of word here) feeling stupid and tired as I stumble into things. I honestly think I’m going to stop taking them, as I’ve been told to take them twice daily as needed, because they are clearly not helping me out at all and I am still in pain. I don’t want to seem like a drug seeker or anything, but we are not yet at a place where I feel like I can indulge in hobbies and interests with the time I have to participate in them without having to work around that by scheduling doses of medication and wearing 80% amber-tinted sunglasses. So how do I speak up here?

At any rate, sunglasses and all, the boys’ all-in-one computer is almost fully loaded! I will then defragment the HDD drives, which are thw two external drives currently storing the majority of Bub’s games, and at that point I think I will have at it. I might bring up Among Us, music and all, to see if Bub runs in here squealing.

I need to come up with clever subject lines.

As probably predicted, I am still trying to get off of the prednisone train.

However, I absolutely needed it yesterday when Fioricet did not work.

I was actually at about a nine out of ten on the pain scale.

And I still hate this medication… I really, truly do. My body just does not like it any more.

In other news, our dryer died a peaceful death of old age last weekend. We contacted an appliance repair specialist about it that was supposed to come out to our house to see if it could be repaired (and if so, how much that would cost), but they never showed, and they never even called to let us know that they would not be showing. So we have to follow up on that. This afternoon, someone is supposed to bring a new dryer to our house so that we can actually dry our clothes without having to hang them after they’ve been washed. Good times… I guess. I guess we’ll be seeing how that goes in several hours when it should arrive.

We usually run two dryers here, so the jury is still out on whether this one can actually be repaired.

Here we’ve got Omicron, screwing up more shit.

Since more and more hospitals are going back to doing only necessary surgery, the work-up for severe diastasis recti that I was undergoing seems to have to be shelved. Since I don’t intend on having any more children, it wouldn’t have been a significant bother for me to undergo surgery to correct it, and I could lower my dose of prednisone if needed such that it would be as safe as it was ever going to be — assuming, of course, that I ever took it again, which I don’t want to because my body has finally gotten to the point where it can no longer manage oral steroids without sometimes significant problem. I mean, if they do it at any point during this pandemic, they do it. I’d ideally like it to be done as soon as possible so that I can get it done and heal from it, but if it’s not safe to do because COVID-19 cases are once again climbing and we have a mutation out there that more people are susceptible to… then I’ll wait. Even though I won’t like it…

And the saddest thing of all is that this could have been picked up on years earlier than it was even noticed.

And prednisone is still out here in these streets.

I’ve finished up one of the antibiotics which was for fungal infections and only lasted a few days. Now I have to finish up the other antibiotic, which runs the gamut lasting about as long as these things tend to last, and I have to finish up the low dose of prednisone that both of my doctors want me to end up on (followed by me never touching prednisone again unless it is an imminent, and I mean imminent, matter of life and death… and even then, assuming that I have any choice in the matter by way of having it charted in my medical files, I’m going to want something else first if I can be given something else). There actually seems to be some improvement with the gum and jaw infection that prednisone caused, although I need a lower dose of prednisone to cause the swelling on that side of my mouth to go down and stay down. But for some reason I’ve been having worse migraines since all of this started, even (especially) for me. Par for the course, eh?

At some point I’m going to need to post something up here about “Thasmin going canon” since I’ve been a fan of Doctor Who for quite awhile. It’s actually kind of surprising that I haven’t so far. I got into Doctor Who with the 2012 Christmas special and haven’t looked back. The fandom is also a lot less vitriolic than the Supernatural fandom, and if all fandoms were even remotely like this — I’m aware that most generally are with minimal “fandom drama”, but some of them are not — I might consider going to a convention or two, or at least think about it, but I honestly think that with things the way they are in general right now my best bet is to continue to keep all fandom activities on the Internet (even the good people that I’ve met through them) and not allow them access to my real life. As it is, my real life is markedly different from my “fandom life” anyway to the tune of the fact that I maintain separate social media accounts for fandom-related activities and real ones, excluding Facebook where I run filters on everything so that people I know in real life very infrequently cross paths with those who I know on the Internet, and at that, those who like varying degrees of the favorite things that I do. I may talk about liking Supernatural on my Facebook page, but I scarcely mention anything related to the fandom… or fandoms in general, so no, it’s not “just Supernatural” here.

1 25 26 27 28 29 45