Posts Tagged ‘disability’

If it’s not one thing it’s another, but we make do.

Bub’s Steam Deck came in the mail yesterday!

I’m in the process of setting that up for him. I need to get a microSD card for it so that he has access to all of his games, and I’m in the process of having one shipped to my house now. It’ll get here when it gets here, and then I can finish putting this thing together and give it to him for his birthday. The theme of this year’s birthday is (probably what it has always been, but with a bit more oomph this time) games, because Bub loves games. That’s one of the ways that we’ve bonded over the years, and I see absolutely no harm in it.

I also got my formal assessment results in the mail, and I am autistic! Not that I wasn’t told that I was after I completed testing, and I don’t see it as a disability (I do have mild adaptive deficits, but a lot of those come from anxiety, and I have generalized anxiety disorder largely caused and exacerbated by… well, my mother, who I’ve written about, and who I’ll probably continue to touch on in subsequent posts to flesh this out a bit further). I have the results kept in the bottom dresser of my drawer where I tend to keep important things that I’m not going to need to grab on a regular basis, things that I’m probably not going to need to grab at a moment’s notice for some reason, so it is what it is. I mean, I already knew that I was autistic, so… yeah…

Don’t tell me something I don’t already know.

My pain management clinic wanted to make sure I knew how disabling my migraines actually are — yeah, don’t get me wrong, I’m aware, I just try to ignore as much as I can for as long as I can (and trust me, this has not been a tenable option for a long time) — as far as employment prospects go. I have found a lawyer who is more than willing to take my case on to help me get disability, though. He’s only going to take a certain percentage of my backpay if successful, which I am more than fine with. As soon as his office got the function report back from my pain management clinic, someone immediately contacted me with new client paperwork to fill out, which I filled out and sent back to them, and I gave them a copy of my state ID. Then he contacted me a few hours later to tell me that he would be the one taking my case, asked me if I had requested the hearing yet (I had), and made sure that I got the papers back to his office that allowed them to request more recent copies of my medical records. Done and done. You don’t have to tell me twice here…

I’d still like to make something out of streaming, but I acknowledge that there are and will be limitations there as well, especially with where my migraine frequency and severity are at. Plus, in the long run, if I do make something out of streaming, there is a waiver in place that will allow me to keep Medicaid eligibility as a disabled person up to a certain point because I can prove that I need it to continue to be able to stream.

Am I going to do this again? I don’t know.

So, not too long ago I had the first of what is supposed to be two nerve ablations to the back of my head to see if this stymies migraine pain. They numbed the back of the left side of my head after liberally applying chlorhexidine to it, which I liked a lot because numbing it with lidocaine (did they also use dexamethasone? I don’t know) has immediate effects on any pain that I may be having. Once that fully took, they inserted probes into the back of my head that I did not even feel that sent pulses to the left side of my occipital nerves over the course of four minutes. Once I was done I was done. The probes were removed, I was bandaged up, and I was good to go. Getting home was… fun, though, especially once the local anesthetic wore off and everything hurt. I was told that the nerve “healing” would hurt a bit, but then it would stop hurting because it would not be able to communicate feelings of pain (or as effectively, anyway), but we’re still in the part of that where it hurts, I feel a whole lot of pressure, my body is trying to make sense of what happened, and I don’t like the feelings that this is producing in the back of my head. Fioricet has not even helped me here.

I have literally had to take 40mg to 60mg of prednisone to make the back of my head feel tolerable.

I’m not sure if I’m going to have the right side of my head done if this is how the left side continues to feel.

I mean, I should really have expected this too.

Bub and I are sick with… something. It is not COVID. We’ve tested for COVID with some of the tests that we have here at the house and both of them are negative. If we continue to have concerning symptoms I will have both of us antibody (or is it antigen?) tested. This will be particularly concerning for me if I have it.

I am also continuing to get severe migraines on Lexapro that are only touched by prednisone, and this is not sustainable for long periods of time. I’m starting to wonder if this medication is… just not right for me, because we might have to throw pain medication at it just for me to be able to tolerate it, and then that’s going to start a chain of events that might interact with other medications that I am on that I need to be on.

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