Posts Tagged ‘advocacy’

Prior authorization drills are fun.

And by “fun”, what I really mean to say is “attempts by insurance companies to gatekeep patients away from necessary medications, attempting to justify not wanting to pay to cover them”. What happens is:

· your doctor decides that you need a medication, and prescribes it
· that prescription is given to your pharmacy
· your pharmacy attempts to fill that prescription for you
· this script is presented to your insurance for coverage
· insurance denies coverage of this script
· they request that your doctor fill out forms attesting to your need for it
· your doctor has to fill out forms stating that yes, you need this medication
· these forms are sent to your insurance to approve
· if approved, your insurance authorizes your pharmacy to fill the script
· you are able to pick up your medication from the pharmacy

Basically, it’s a really snarky, underhanded, “but do you really need the medication?”.

A few medications that I take require this, and they require documentation that I have tried to take other medications and that they have not worked on me to be submitted… every twelve months.. for my insurance to continue to approve these prior authorization forms (as though these medications that I have tried in the past will suddenly, miraculously work on me one day) so that I can continue taking necessary medication…

To say “it’s a hassle” might be understatement of the year, and we are only in January. But it’s the truth.

“Gifted” in areas, needing help in others.

This post directly follows my last post relating to the experiences that I had attending secondary school.

However, this post, as with the last one, focuses on experiences of mine attending high school.

I was enrolled in my school’s gifted and talented program in second grade, and chose to quit it during grade eleven when my history teacher made some ableist remarks in the classroom one day about how the “smart students should only (associate) with each other, and not the normal students”. He made it clear when he said those things that he meant them, and he made it a point to look at me when he was saying them. I didn’t feel comfortable continuing to be part of a program that prioritized cohesiveness based on one’s perceived intelligence, made that abundantly clear as I quit the program, and had the backing and support of both of my parents, who were appalled that a teacher involved in the program was using the platform to disseminate views like this (“even if he was joking”… although no, it did not seem like he was actually joking).

As I went through the process of quitting the gifted and talented program, it came up that I had been struggling in math for years based on my grades and self-attestation, and I had asked if there were any supports that could be given to me to better help me understand material that I struggled with. The school actually had the audacity to tell me that since I had tested into the gifted and talented curriculum, I “didn’t need (those) supports and services,” pointed out that I had not actually failed any math courses, and furthermore, had the audacity to tell me that they would refuse to provide me with any supports and services relating to my struggles in math even though my grades made it clear that I struggled with my understanding of the material in comparison to the other core subjects, which I excelled in. This was around when I realized that because the school “saw” me as gifted, they weren’t actually going to assist me in any area in which I struggled because they would fall back on the fact that I had, at least for a long stretch of time, been enrolled in the gifted and talented program. This was actually a regret of my mother’s — she would later tell me that if she had known that this would cause so many problems, especially as it related to the fact that it would take me all the way until college statistics and algebra to gain a sufficient understanding of mathematics, one that I should have gained while I was still in secondary school, and if I was going to be exposed to these blatant ableist ideologies as a result of my parents consenting to allowing me to be involved in the gifted and talented program, my parents would never have consented to allow me to be a part of the program in the first place. And to be frank, I can see why my mother said what she said.

My entire time spent in secondary school left a lot to be desired overall, especially for reasons like this.

At the time, I didn’t know that what the school did was actually illegal — even if a student demonstrates sufficient understanding, or mastery, in one or more core subjects but struggles immensely in another, they are to be offered appropriate supports and services to help them achieve mastery. “Being a part of the gifted and talented program at one point” does not prevent the school from offering these supports and services.

I did not have any idea that there was even a thing called dyscalculia until I was in college, and that’s sad.

If someone says that they’re disabled…

Believe them. Please just do everyone a favor in general and take them at their word.

And for the record, the Google definition of disability, to make it even easier on people:
“a physical or mental condition that limits a person’s movements, senses, or activities.”

I can not begin to convey in here, let alone articulate, how many times I have seen — or heard — people playing “the disability police”, being the arbiter of whether or not someone is “disabled enough” or “truly disabled”. If you live in the United States, you probably already have a good idea how difficult it is for an adult to actually get disability benefits. Not getting them does not mean that they are not disabled. One’s worth is not defined by the job that they have, any jobs that they are capable of holding, or their lack of job.

Some people are disabled and can work. Some people are disabled and can not work.

Sometimes this fluctuates over the course of the disabled person’s life, depending on their disabilities.

This does not mean that they are not disabled, or that their disabilities have any less of an impact on them.

For able-bodied people to smugly suggest jobs that they think someone who is disabled should get, or “be able to work”, is so outrageous that I don’t actually have words for it other than the fact that it is so smug that I don’t ever want to be around when it actually happens. It must take an extreme amount of smugness to sit on your high, usually middle-class throne to make comments like that when you’re not disabled (and no, your intermittent conditions do not count if they are not disabling, so do not use them trying to gain clout with the community… I’ve seen this happen when these folks have their feet held to the fire, as they should), not having any of the lived experiences that come with disability. Do these folks not even hear themselves?

If a disabled person says that they can’t do something, please just take them at their word.

The person living the experience, the disabled person, should be able to describe in sufficient detail what their limitations are, and it should go without saying that since they live with those limitations every day — at least as a general rule of thumb insofar as them being disabled, having that disabling condition — that they should be believed when they discuss them. We as a society should more automatically believe them.

It would make disabled people’s lives so much more easier as a whole if people just simply did this.

Comparatively speaking, very few people lie about being disabled. Far more people are telling the truth.

Ways that I accommodate for my disabilities.

These are just some of them, and I thought I would share them here.

· wearing sunglasses in the house, or indoors, as necessary
· keeping lights in my area of the house dimmed (sufficiently on, but dimmed)
· keeping the brightness setting on my cell phone suitably low
· running fl.ux on my computer in Cave Painting mode
· taking medication for migraines at the very first signs of a migraine, rather than questioning it
· setting up posts to queue when I’m feeling alright, just in case I have a particularly bad migraine (for me)
· getting as many non-daily chores done as I can when I’m “having a good run of things”
· trying to limit screen time (especially so I can “use those spoons” on video games for Bub as needed!)
· keeping the volume low, or even off, on things unless it absolutely needs to be on for whatever reason
· making sure that I get plenty of sleep each night, and making the conscious effort to do so

1 6 7 8 9