Posts Tagged ‘advocacy’

If someone says that they’re disabled…

Believe them. Please just do everyone a favor in general and take them at their word.

And for the record, the Google definition of disability, to make it even easier on people:
“a physical or mental condition that limits a person’s movements, senses, or activities.”

I can not begin to convey in here, let alone articulate, how many times I have seen — or heard — people playing “the disability police”, being the arbiter of whether or not someone is “disabled enough” or “truly disabled”. If you live in the United States, you probably already have a good idea how difficult it is for an adult to actually get disability benefits. Not getting them does not mean that they are not disabled. One’s worth is not defined by the job that they have, any jobs that they are capable of holding, or their lack of job.

Some people are disabled and can work. Some people are disabled and can not work.

Sometimes this fluctuates over the course of the disabled person’s life, depending on their disabilities.

This does not mean that they are not disabled, or that their disabilities have any less of an impact on them.

For able-bodied people to smugly suggest jobs that they think someone who is disabled should get, or “be able to work”, is so outrageous that I don’t actually have words for it other than the fact that it is so smug that I don’t ever want to be around when it actually happens. It must take an extreme amount of smugness to sit on your high, usually middle-class throne to make comments like that when you’re not disabled (and no, your intermittent conditions do not count if they are not disabling, so do not use them trying to gain clout with the community… I’ve seen this happen when these folks have their feet held to the fire, as they should), not having any of the lived experiences that come with disability. Do these folks not even hear themselves?

If a disabled person says that they can’t do something, please just take them at their word.

The person living the experience, the disabled person, should be able to describe in sufficient detail what their limitations are, and it should go without saying that since they live with those limitations every day — at least as a general rule of thumb insofar as them being disabled, having that disabling condition — that they should be believed when they discuss them. We as a society should more automatically believe them.

It would make disabled people’s lives so much more easier as a whole if people just simply did this.

Comparatively speaking, very few people lie about being disabled. Far more people are telling the truth.

Ways that I accommodate for my disabilities.

These are just some of them, and I thought I would share them here.

· wearing sunglasses in the house, or indoors, as necessary
· keeping lights in my area of the house dimmed (sufficiently on, but dimmed)
· keeping the brightness setting on my cell phone suitably low
· running fl.ux on my computer in Cave Painting mode
· taking medication for migraines at the very first signs of a migraine, rather than questioning it
· setting up posts to queue when I’m feeling alright, just in case I have a particularly bad migraine (for me)
· getting as many non-daily chores done as I can when I’m “having a good run of things”
· trying to limit screen time (especially so I can “use those spoons” on video games for Bub as needed!)
· keeping the volume low, or even off, on things unless it absolutely needs to be on for whatever reason
· making sure that I get plenty of sleep each night, and making the conscious effort to do so

Walkthroughs are not a bad thing.

In so many circles have I seen walkthrough use lamented as the actual bane of other people’s existences — the idea that other gamers might need enough help to use them, or the idea that other gamers would use them. Allegedly you are not a “hardcore enough gamer” if you need to use them. Some people devote way too much of their time to defining what is a “hardcore enough gamer” to come up with arbitrary requirements as to what this… entails, and I try to avoid these conversations and associating myself with these people, but I’ve seen enough peripheral complaining about walkthrough use that I had to mention it.

You are not a bad gamer, or “not hardcore enough of a gamer”, if you need to use a walkthrough.

Even if you need to use a walkthrough for every single game you play, that does not define you as a gamer.

You are not “less than” for needing assistance in games.

This is an insiduous form of gatekeeping, and I dislike it a lot. God only knows that I’ve used walkthroughs when playing games, especially with Bub, to cut down on the amount of screen time that I expose myself to in the name of not giving myself an unnecessary migraine. If I can plan out what I’m going to do in a game when, I can shorten my exposure to the screen, which is an extremely good thing. This allows me to continue to enjoy something that I love, let me play video games with Bub, all while not walking myself into a particularly severe migraine — for me — because I spent hours wandering around lost in a video game.

So far, walkthroughs have allowed us to enjoy games in that they allow us to shave off time that would otherwise have been spent wandering around absolutely lost causing a migraine for no reason. We achieve short objectives, frequently save the game just in case, I monitor for symptoms, and we continue from there…

But there is a reason that there is the ongoing joke that our backlog is far taller than Bub. No shame in that.

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