Archive of ‘personal’ category

A slightly longer post encapsulating things, I guess.

Good news: I am completely at baseline, am making steady progress bridging my oldest son into adulthood although he will continue to need lifelong assistance, and am waiting until Thanksgiving holiday and the following weekend are… done with before I call my primary care physician about possibly, probably needing to be put on Plavix (aspirin is a no-go for me for a number of reasons and has been untenable for years), and touching base with a neurologist about my epilepsy rather than having him handle it as admirably as he has handled it in the past. I don’t mind this as long as I don’t get the most recent neurologist I had before I switched migraine care to the local pain management clinic, because all she did was throw triptans at me telling me that I would “have to get used to the (migraine) pain” when triptans are contraindicated in people with cardiovascular issues and this was something that she did not even bother attempting to look at or confirm, come to find out that triptans were causing significant problems in me unrelated to my migraines and that I shouldn’t ever have been put on them in the first place. But no, it was triptan after triptan from her, and I’m glad not to have been in her care for as many years now as I… haven’t. I’d really like that to continue.

That’s all I can think of to update this with right now so I suppose I’ll update with more when I think of more!

I need a break for the break I was supposed to have.

This was supposed to be a nice, relaxing vacation away from… well, everything.

And then the state informed me that I had to set my oldest son’s disability and survivor’s benefits up for… well, adulthood, even though he’s going to continue to need me to manage his funds for him well into adulthood. It was right around that time that my epilepsy began worsening to the point where I couldn’t talk for longer and longer periods, and that’s when I knew I had to get checked out by the local hospital (again).

At this rate I’m going to need a break for the break I was supposed to get if any of you get me.

I love having to set all of this stuff up, and by that…

…what I really mean to say is that I don’t. I wouldn’t deal with these programs if we didn’t have to.

I thought I had most of this set up so that my oldest son could effortlessly bridge onto the survivor’s benefits that he will continue to need as an adult, but that was actually sort of contingent upon Social Security (where he gets the survivor’s benefits he’s been owed since his father passed away) and Supplemental Security Income (SSI) communicating with each other’s offices, and it’s already become clear that this is not happening. With any luck, calling the local Social Security office tomorrow should iron out everything that I need to have ironed out for him so that those benefits continue to be paid out when and where they’re supposed to be paid out, but I wouldn’t be surprised if this is yet something else that I have to chase down making the Social Security Administration do their actual jobs. And to think I already thought I’d ironed all of that out, because evidently I haven’t. I’ll be giving their office a call tomorrow morning, hoping that I’m able to get through to someone live within the first fifteen or twenty minutes of that phone call, making sure that they do indeed have everything notated that they need to have notated for benefits to seamlessly continue, and then sit on my ass for the next week or so since this is Thanksgiving holiday. Let’s see how it goes…

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