January 2022 archive

That went a lot better than I thought it would.

I did the same song and dance that I’ve done with HHSC since 2014, whereupon for some reason the boys’ child support cases would be referred to the child support office for enforcement in spite of the fact that Monster’s child support order has had a good cause waiver on it since custody was finalized, barring the two weeks in which enforcement efforts were taken because of a screw-up that probably got someone fired, and the fact that I was literally never told that I could request one in Bub’s case until 2014, which would have completely bypassed a custody, support, and visitation order being drawn up to begin with. (More to the point with Bub’s child support case and everything else related to it: I was told that if I “didn’t comply”, we would lose some of the benefits that our household gets. I was never informed that I could have claimed good cause since the start, continue to get those benefits, and not have to cooperate once it was approved.)

However, when told that Bub’s good cause waiver “wasn’t approved” by the chief ombudsman (although I had originally been told by a representative that both waivers were approved and quickly got the impression that this was not something I was supposed to know, that HHSC and the child support office were merely choosing not to honor my youngest son’s good cause waiver in attempts to enforce the child support case of his that never should have been drawn up to begin with), I began leaving comments on their social media pages. I began talking about what was going on, which ultimately drew the attention of HHSC because I was frequently using phrases like “endangering my child” and “endangering my family”. I decided that it would be worth my while to lodge a daily complaint on the child support website against the chief ombudsman who insisted on leaving a potentially unsafe case open for active enforcement, then going so far as to send messages over the child support website stating that I was no longer comfortable with her involvement in my children’s cases. I sent a few more internal e-mails about… why this was even happening to individuals working for HHSC that had helped out when this had happened in the past. Along with filing a formal complaint with the HHSC Ombudsman every single day, I filed a complaint about Bub’s case on the Federal Child Support Agency’s website (or whatever the specific name of it is). The squeaky wheel was going to get the grease or a lot more people were going to know about this. And I contacted Legal Aid again.

I made it clear that if I was going to have to litigate over this, unless I couldn’t (I did STEM prior to the onset of disability, not law) that I wanted to be compensated in the form of all of the arrears on Bub’s child support case or the maximum that you can get from a civil case. Maybe assigning a dollar value to it helped out…

At any rate, imagine my surprise yesterday afternoon when I get a call from someone at the HHSC Ombudsman’s office stating that Bub’s good cause waiver was being upheld, that enforcement would immediately cease on the case, and that we had nothing more to worry about as it related to HHSC and the OAG potentially jeopardizing us. (Now all I have to do is actually get disability for myself someday, don’t I?)

Single-dose prednisone too has taken the L, folks.

The last time that I wrote about prednisone it was in the context of… not wanting to take it again due to severe side effects, but then I was presented with the opportunity to single-dose myself at infrequent intervals (no more than two consecutive days) if that was something that I wanted to attempt. Knowing that prednisone has significantly helped with migraine pain and moderately helps out with symptoms of bronchial asthma that are severe enough to warrant consideration of its use, I wanted to give it one more try before I gave up on it. And for awhile, this seemed like something that would work. It allowed the bad side effects of prednisone that I need to avoid to become balanced, or more manageable, while letting me experience some of the effects of prednisone that we wanted to see happen… but that didn’t last forever.

Or for even that long at all. Comparatively speaking it wasn’t even that long.

Even on the lowest possible doses of prednisone not taken every single day but only as needed, I was still getting sick and having side effects bad enough to make the medication intolerable. In spite of lowering the dose and decreasing the frequency, I was still coming down with more frequent opportunistic infections than I should have been, and this is said as it should simultaneously be taken into consideration that I have been taking oral steroids as needed since 2012. I know how important it is to stay clean, to frequently wash your hands, to mask up and not to get too close to people when it can be avoided, and I was expertly juggling these requirements until prednisone became too much for my system to take at any regimen. As far as decreasing migraine pain goes, I can voice these concerns in the context that this may very well actually open the doors for me to be prescribed stronger pain medication. Triptans do not work for the specific type of migraine that I most frequently, almost always suffer from, and Fioricet was only still tolerable when taken with prednisone as needed for the “worst” of those migraines. As far as symptoms of bronchial asthma go, I can just present to urgent care or the emergency room more liberally in lieu of starting the prednisone that… now can not be started because of all of the side effects that it is giving me even at the lowest possible doses. By presenting early enough in an exacerbation, especially to the emergency room, I can be given other medications that do not have these same risks. It may well be that I eventually have to abstain from taking steroids at all. And I mean, they were useful for awhile, so this will suck, especially as time passes.

’round and ’round we go again here, I guess.

For some reason, after our SNAP renewal the state has seen fit to refer Bub and Monster’s child support cases to the OAG (Office of the Attorney General) again… in spite of the fact that good cause waivers exempting them from this benefit requirement were approved for both cases as of May 2021. I’m not sure why this continues to happen like clockwork as it mysteriously has since 2014, but I’ve been initiating closure requests on both cases since they opened and will continue to do so each day. I also e-mailed the contacts that I have from HHSC and the OAG, and I’ve made sure that there is a paper trail of me not having revoked either of the good cause waivers. In addition, I submitted a formal complaint to the HHSC ombudsman. The last time that I had to do this, I was in the process of acquiring a lawyer through Legal Aid to litigate. As soon as HHSC and the OAG found out that I had done this, they immediately put both cases back into non-enforcement where they stayed for several months. I’m merely chronicling this here to attest to the fact that it has once again happened, it continues to periodically happen in a problematic way, and I want it to stop.

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