Posts Tagged ‘parenting’

Prednisone has claimed its 666th casualty here, y’all.

As most of you already know, I was put on prednisone because of breathing difficulties. We’ve tried to lower the dose and make it less frequent over the… months and years that it has become increasingly more problematic, but for me it seems like the side effects have drastically been outweighing the good things that it does for me to the tune of reconsidering whether or not prednisone is a viable medication for me to take.

Well, in spite of using mouthwash one to two times a day and brushing twice a day, I managed to get a sudden gum and jaw infection. As it became increasingly more uncomfortable, I began drinking soda and water from straws and sticking to softer foods like chicken noodle soup and ramen (that Bub doesn’t lovingly steal from me because now he loves ramen). Because it came on within a day and a half of starting prednisone once again for something that was very necessary, it was — as it should have been — attributed to prednisone. So now I am on two antibiotics meant to make it go away and fast so that I can resume eating more normally and so the infection doesn’t, well, spread. You know, since I’m immunosuppressed…

At any rate, I also learned something else: that people have read my blog well enough to know that Bub is on Mirtazapine at night to help him sleep (which it does a beautiful job of, by the way, since he was clinically diagnosed with insomnia at age two), and Risperdal during the day to help decrease the violence of meltdowns and to stabilize his mood (and that works really well given where he was at when all of this… escalated to the point that he needed medication, which quite likely could have been kick-started by adolescence). Apparently they have some opinions on this, claiming that I “drug my kid(s)”. And although it’s kind of adorable that they read through my blog well enough to figure out that he’s on two different necessary medications prescribed by his care team, what would they rather me have him do? Be miserable because he can’t sleep? Cry because he can’t sleep? Quickly, and wildly, oscillate between moods and have meltdowns that hurt people? It sure seems fun for people to point fingers about how I supposedly “drug my kid(s)” when these are both medications recommended and prescribed by his care team, consensually taken by him every morning and evening. Sadly, this goes right back to the fact that even in 2022 (which has just barely started and already, people are wilding out for no good reason), people continue to medication shame and pill shame, which does nothing to support those with mental health illnesses… least of all actual kids.

If you’re jealous that Bub is clearly living his best life over here, by all means, just admit to being jealous.

Now that we’ve gotten all of that out of the way…

It may have taken us a bit longer than expected because someone didn’t have my phone number correct, but that was remedied, and the last part of Bub’s crisis management (and eventual behavioral) therapy intake was completed! Since this is a… hub that services multiple counties in this area and provides different services, I had to fill out forms for and talk to several different people, but I think I’ve gotten most if not all of my questions answered. It was just a matter of asking the right person. Believe it or not, this hub was also the ones that did Bub’s at-home physical therapy when he was a baby needing assistance with holding himself up during crawling and transitioning to walking. That’s just a different branch of their services, one that Bub doesn’t have any need for since he is too old for it and has no issues with fine and gross motor skills or physical development. I filled out forms attesting to our finances, what services both of the boys — but especially Bub — already receive, Bub had a psychiatric evaluation done since his insurance requires that to start these kind of therapies (and was told that he would definitely qualify for services), and then I sat down with the woman who would go over a plan of care for him while he was receiving crisis management therapy to address more of his immediate concerns with her. Although I would not mind him participating in crisis management therapy if it is still deemed to be the best fit for him, if going straight into whatever behavioral therapy is more appropriate I wouldn’t mind that happening either. We’ll have to see.

Some of this will also have to do on which kind of therapy, or therapies, can best be tailored to his developmental delays and intellectual disabilities. So he’ll need to be examined for that, which I’m completely fine with. After all, there’s no need for him to sit for therapy sessions that he can not actually participate in.

The look on his face is hilarious, I won’t even lie.

Bub had the psychiatric evaluation that he was supposed to have last week — the one that he’s needed to have on file to start behavioral therapy (crisis management therapy to begin with because he has been hurting other people during meltdowns, but especially me as his primary caregiver, and then trauma-informed CBT therapy to ensure that he learns and retains the skills necessary to deal with the overwhelming emotions of meltdowns in ways that do not hurt himself or those around him). Surprisingly, it wasn’t that difficult, and the woman who did the evaluation stated that she was sure that he would be eligible for services. I’m also supposed to get a call next week to give the agency the rest of his behavioral and medical history, because the person that was supposed to call me last week for that… never did, come to find out that she did not have my phone number, so she couldn’t call me if she didn’t have that right. I even checked my call logs. “Why isn’t she calling me like she said she would at…” Like, nope, she didn’t.

She did apologize for getting my phone number wrong, so there was that, but this could have been done.

Anyway, Bub let me cut a little bit more of the hair beside his ears, but not very much. The woman who did his psychiatric evaluation agreed with me that I should continue to make haircuts as minimal stress as I possibly can, and they can also work on it in behavioral therapy (to prevent haircuts from causing him trauma but still being able to do them, or to sit for having them done). But the look on his face in this…

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