Posts Tagged ‘health’

Opening the Floor: Acquiring a Formal Diagnosis

I’ve actually been asked this more than once, a small handful of times, and I don’t mind being asked about it or… well, most questions at all that I’m willing to answer in my blog. I’m as open as book as Rinoa Heartilly from Final Fantasy VIII for those of you who have played the game. Maybe that’s why I like her character…

But the question, so as no to sidetrack: would I ever pursue a formal autistic diagnosis?

I’ve given it a lot of thought, especially as I’ve become more comfortable identifying as an autistic person. If a doctor in my care team said something about it, I would not deny it (I would probably go the route of “I think I may be autistic as well”, especially as it relates to my children). If it helped me get disability benefits I would have the process worked up. My thoughts regarding this have by and far been passive though — if someone wants to work me up I am more than amenable to that. If someone in my care team calls me autistic or possibly autistic, that being their call, I would not deny it. However, I feel that I do not need the same supports that my children need, so it is not something that I would actively seek out at this time to the tune of calling my primary doctor, telling the receptionist taking the call that I thought I was autistic and would like to work the diagnosis up, that sort of thing. In other words, I am not extremely active or pro-active about it, although if having it thrust in front of me I would be agreeable to having it worked up. I hope I make sense!

Yeah, so we actually had to do that… sigh…

So Bub had to get tested for COVID this week, and I would have had to get tested if he came back positive (as would have his older brother, Monster), which would have been an experience. Fortunately, he tested negative, which meant that we didn’t have to get tested! But the fact of the matter is that we live in a state where mask mandates are prohibited by executive order, we’ve sometimes had 25,000 new cases of COVID-19 diagnosed in a twenty-four hour period, and to be frank, our governor just does not care. At all.

Achievement unlocked during pandemic: Have to schedule, and then go to, COVID testing… due to COVID

Nerve blocks and me: a thing that is not working.

I got my first nerve block on the left side of my head at the occipital nerve for migraines.

One day I will be able to spell that. Getting back to what I wanted to write about, though…

It seems that these hit and they miss. For some people they work amazingly well and they only need them every four to six months or so. Other people need them like… every two weeks if their insurance approves it, but they help. And for other people, they do not work for a myriad of reasons. Sometimes the nerve gets nicked and that causes problems. Other times, the nerve block intermittently does not work. And then sometimes the nerve block just plain does not work at all. On the worst side of my head, I feel like I am between it intermittently not working and it completely not working. I put myself back on prednisone since that has a history of helping with migraines, particularly migraine clusters, even though that was the last thing I wanted to do… and it made things bearable. I seem to be someone for whom these do not work, although I am going to give them the requisite week to see if things turn around and my migraines become more bearable. If that does not work on either side, I will discuss giving them more often with my pain management clinic to see if that makes them “stick”, and if that does not work, I will ask about excising the nerves. X-rays that I have had done have confirmed that they are the problem, especially the right one.

There are still some things that can be done to help ease my migraines. I am willing to explore all of them.

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