Posts Tagged ‘health’

And prednisone is still out here in these streets.

I’ve finished up one of the antibiotics which was for fungal infections and only lasted a few days. Now I have to finish up the other antibiotic, which runs the gamut lasting about as long as these things tend to last, and I have to finish up the low dose of prednisone that both of my doctors want me to end up on (followed by me never touching prednisone again unless it is an imminent, and I mean imminent, matter of life and death… and even then, assuming that I have any choice in the matter by way of having it charted in my medical files, I’m going to want something else first if I can be given something else). There actually seems to be some improvement with the gum and jaw infection that prednisone caused, although I need a lower dose of prednisone to cause the swelling on that side of my mouth to go down and stay down. But for some reason I’ve been having worse migraines since all of this started, even (especially) for me. Par for the course, eh?

At some point I’m going to need to post something up here about “Thasmin going canon” since I’ve been a fan of Doctor Who for quite awhile. It’s actually kind of surprising that I haven’t so far. I got into Doctor Who with the 2012 Christmas special and haven’t looked back. The fandom is also a lot less vitriolic than the Supernatural fandom, and if all fandoms were even remotely like this — I’m aware that most generally are with minimal “fandom drama”, but some of them are not — I might consider going to a convention or two, or at least think about it, but I honestly think that with things the way they are in general right now my best bet is to continue to keep all fandom activities on the Internet (even the good people that I’ve met through them) and not allow them access to my real life. As it is, my real life is markedly different from my “fandom life” anyway to the tune of the fact that I maintain separate social media accounts for fandom-related activities and real ones, excluding Facebook where I run filters on everything so that people I know in real life very infrequently cross paths with those who I know on the Internet, and at that, those who like varying degrees of the favorite things that I do. I may talk about liking Supernatural on my Facebook page, but I scarcely mention anything related to the fandom… or fandoms in general, so no, it’s not “just Supernatural” here.

Single-dose prednisone too has taken the L, folks.

The last time that I wrote about prednisone it was in the context of… not wanting to take it again due to severe side effects, but then I was presented with the opportunity to single-dose myself at infrequent intervals (no more than two consecutive days) if that was something that I wanted to attempt. Knowing that prednisone has significantly helped with migraine pain and moderately helps out with symptoms of bronchial asthma that are severe enough to warrant consideration of its use, I wanted to give it one more try before I gave up on it. And for awhile, this seemed like something that would work. It allowed the bad side effects of prednisone that I need to avoid to become balanced, or more manageable, while letting me experience some of the effects of prednisone that we wanted to see happen… but that didn’t last forever.

Or for even that long at all. Comparatively speaking it wasn’t even that long.

Even on the lowest possible doses of prednisone not taken every single day but only as needed, I was still getting sick and having side effects bad enough to make the medication intolerable. In spite of lowering the dose and decreasing the frequency, I was still coming down with more frequent opportunistic infections than I should have been, and this is said as it should simultaneously be taken into consideration that I have been taking oral steroids as needed since 2012. I know how important it is to stay clean, to frequently wash your hands, to mask up and not to get too close to people when it can be avoided, and I was expertly juggling these requirements until prednisone became too much for my system to take at any regimen. As far as decreasing migraine pain goes, I can voice these concerns in the context that this may very well actually open the doors for me to be prescribed stronger pain medication. Triptans do not work for the specific type of migraine that I most frequently, almost always suffer from, and Fioricet was only still tolerable when taken with prednisone as needed for the “worst” of those migraines. As far as symptoms of bronchial asthma go, I can just present to urgent care or the emergency room more liberally in lieu of starting the prednisone that… now can not be started because of all of the side effects that it is giving me even at the lowest possible doses. By presenting early enough in an exacerbation, especially to the emergency room, I can be given other medications that do not have these same risks. It may well be that I eventually have to abstain from taking steroids at all. And I mean, they were useful for awhile, so this will suck, especially as time passes.

Opening the Floor: Acquiring a Formal Diagnosis

I’ve actually been asked this more than once, a small handful of times, and I don’t mind being asked about it or… well, most questions at all that I’m willing to answer in my blog. I’m as open as book as Rinoa Heartilly from Final Fantasy VIII for those of you who have played the game. Maybe that’s why I like her character…

But the question, so as no to sidetrack: would I ever pursue a formal autistic diagnosis?

I’ve given it a lot of thought, especially as I’ve become more comfortable identifying as an autistic person. If a doctor in my care team said something about it, I would not deny it (I would probably go the route of “I think I may be autistic as well”, especially as it relates to my children). If it helped me get disability benefits I would have the process worked up. My thoughts regarding this have by and far been passive though — if someone wants to work me up I am more than amenable to that. If someone in my care team calls me autistic or possibly autistic, that being their call, I would not deny it. However, I feel that I do not need the same supports that my children need, so it is not something that I would actively seek out at this time to the tune of calling my primary doctor, telling the receptionist taking the call that I thought I was autistic and would like to work the diagnosis up, that sort of thing. In other words, I am not extremely active or pro-active about it, although if having it thrust in front of me I would be agreeable to having it worked up. I hope I make sense!

1 19 20 21 22 23 37