Posts Tagged ‘disability’

03
Jun
2023

I would have written something of more substance…

categories: personal; word count: 140 words

…but in spite of having fairly frequent if not constant migraines for God only knows how long, and “being able to work”, I haven’t been able to do much. I’m still wondering what people expect me to be able to do.

I have managed to finish getting Bub birthday presents, though! This meant that I finished pre-ordering video games for him for the month (which are played after I’ve taken a dose of Fioricet or drunk kratom tea, which I will address in later posts because the latter actually works a lot more than the former), to include some farming and fetch quest games that I know he’ll enjoy. I like to keep games pre-ordered out in advance for Bub so that as he gets games every month, or every few months, there are more games for him to enjoy.

01
Jun
2023

I need to come up with better subject lines.

categories: personal; word count: 132 words

I would have written something of substance in here, but I continue to fight for disability benefits.

I am also more seriously considering the move out of Texas when that time comes, and taking steps to plan for it. The money donated to the kids’ ABLE accounts will be saved up for moving truck and transportation purposes when that time does come, as I would like to explore content creation in a state that is friendlier to disabled people and has better supports and services. The primary goal is getting out of Texas, though. I swear, this state is following right behind Florida making itself absolutely inhabitable to marginalized people.

As of right now, I am approximately a third of the way there and am more actively going to commit to this.

14
May
2023

I miss taking Bub on the walks like this we did.

categories: personal; word count: 57 words

Since I continue to be at high risk for complications from COVID, we continue to limit the activities that we do outside the home. I used to take Bub on these walks almost every day to fulfill the physical education requirement of homeschooling him, and he loved every minute (especially when he could make the park his!).

07
Apr
2023

I liked this so much I had to steal it from Instagram.

categories: personal, television shows; word count: 158 words

I feel like this is the most accurate representation of autism I’ve seen, all tied up with a neat little bow.

Or, well, almost.

I definitely have the social differences, myself.

I have what a lot of people call “special interests”, but I’m not sure I am comfortable with that terminology.

I don’t have many sensory sensitivites, other than the fact that I have to sleep in complete darkness to actually go to sleep, I have to be in the same position I’ve been in practically my whole life, and the blankets have to be arranged in a certain way. If that doesn’t happen, chances are… slim that I will fall asleep.

As for emotional regulation, I’ve been compared to Daria from Beavis & Butthead since that show came out.

I embody the satire. I am the satire.

I’m not sure about perception unless that’s defined as reading people, which I am not that good at.

“Other” amuses me.

28
Mar
2023

After giving it some thought I am back at it.

categories: personal, phone & tablet apps; word count: 127 words

I had begun learning French on Duolingo years ago, but gave up on it after gabapentin and prednisone made it more difficult to remmber things. But now, for some reason, I want to try again and see how well I do! I’m waiting until I master each section of lessons on Legendary before I go forward and seeing if that’s a good metric to guide me on how much in that area I “know”, but at the very least it’s getting me enough experience to be in the Sapphire League on week three. I am really digging this right now. Some of that may be due to the fact that I’m now on gabapentin for ADHD. I’m taking it a day at a time maintaining my streak.

17
Jan
2023

It took three years of being in a pandemic…

categories: personal; word count: 205 words

…but I finally tested positive for COVID on Monday, which really wasn’t that surprising, to be honest.

I was prescribed Paxlovid as soon as my primary care physician found out, and sometimes the cure is worse than the disease. I’ve been oscillating through symptoms of something with each dose. My goal is to get the full five days worth of it taken so that I don’t continue to be infectious to other household members, but if it gets to the point that I am completely debilitated by taking Paxlovid, tougher decisions will have to be made. First there was the fever. Then came the nausea. The fever decided to come back. And now there’s the weakness, which I really hope goes away. If there are two things I can’t stand, it’s nausea and weakness that is not made better by napping or sleeping. It makes “Paxlovid mouth” pale in comparison, because I mean… there’s Topamax, which also alters how you perceive taste. So I’m kind of used to that already. Weakness not made better by rest is something else though, and something completely different. I would not wish this on anyone. I’m just hoping that the worst of these symptoms clear up soon. …really soon.

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