the blog of a disabled mother who likes to game, and "get in the pit"
I’ve had a migraine for six days now that Fioricet has not touched, and Fioricet… usually does.
At the very least, it helps, enough for me to be seen by a member of my care team.
This is also the longest period of time in which I have had an active migraine in, well, ever.
If this doesn’t break sometime tomorrow, I’ll be asking my care team what they want me to do next.
It would be like Bub to sit on a table, and for Monster to smile at the camera while Bub watches telly.
Yesterday, the boys had their final visit with the developmental pediatrician before he’s set to retire in December (which is around Monster’s eighteenth birthday, and something that I’m going to get into as this post continues). The developmental pediatrician recommended that I pursue guardianship for both of the boys as they get closer to adulthood, and wanted me to start on Monster’s case a bit earlier than his eighteenth birthday because he would be willing to fill out competency forms before his retirement to make my life a lot easier. So I’m waiting to hear back from Legal Aid on whether or not they will accept that case, even though they should accept both of them as the years go on. It’s just a formality that I have to go through… both times. I might have to go through it three times, because at some point I want to change my name, although I wouldn’t mind doing it around the same time or in the midst of guardianship either time.
This is going to be a fun experience, and by that I mean not fun… especially the name change I want.
It will all be worthwhile though, and that’s what matters, even if I have to update my About pages on here.