Posts Tagged ‘disability’

Epilepsy 001: my messiest grand mal seizure.

Last Monday, as I had just gotten done loading the kids in my dad’s car, I was hit with a grand mal seizure.

I don’t remember this so my recollection of it is entirely predicated on what others who saw it and were aware of it told me. I was on the phone with my sister-in-law and a friend of hers and managed to go down with the phone still in my hand, so they saw everything. I dropped to the ground at my kids’ therapy clinic in front of everyone and emergency services were very nearly called, but my oldest son told everyone that I had epilepsy (complete with diagnosis and all), that I was having a seizure, and that I had an action plan. He didn’t say this in quite so many words but he managed to get the point across to the point that someone else didn’t summon emergency services. I continue to be surprised over this because I was told by numerous sources that my grand mal seizure was the most frightening thing they had ever seen, and it made me feel bad that I had a seizure like this in front of so many people. I continued to stay on the phone video chatting with my relatives and this happened a second time with me dropping to the ground — I remember hitting my head on the concrete beneath it, not feeling it because I was seizing — and managing to convince my father not to take me to the hospital “because my kids needed me at home”. My loved ones saw me do this again.

I will be making an appointment with my new primary care physician to transfer care of my epilepsy back over to a neurologist next week. I’m told that people thought I was going to die having that initial seizure.

I can’t leave my family. I can’t leave my loved ones. I’m not ready to risk that. Send mother fucking Tweet.

This shouldn’t really surprise me, but it does.

Now that we’ve gotten Mother’s Day out of the way (as well as the almost obligate “pet moms”), I can write!

I’ve been trying to get in touch with someone that I did SEO work with awhile ago. I stopped doing that on good terms with the company… or so I had thought. A few months ago I decided to try and shoot my shot to see if I could resume doing SEO work for them and they have responded to precisely zero of my messages when I inquire about easy-to-implement disability accommodations. In hindsight, this really should not surprise me, especially with the United States’ current president and his political party. In chronicling this on my social media I have had to describe what the Americans with Disabilities Act (ADA) is and what reasonable accommodations are. Some of the accommodations I request are in regards to being the caregiver of autistic and intellectually disabled children, so I do need to be given some additional time to perform tasks that have nothing to do with them and everything to do with me. And still… absolute crickets.

It would genuinely be really awesome if I could resume work with this company, but I digress.

Taking James with me to the restroom, y’all.

I was picking up some of James’ medications yesterday afternoon and had to use the restroom, so I brought him into the restroom with me which is what I do whenever I have to use the restroom in public as it keeps James safe from attempting to elope. He doesn’t mind me doing this since it’s all he’s known, but we don’t exactly live in the best state for this even though his disabilities are obvious… I can not wait for us to move.

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