Archive of ‘personal’ category

Only one of these things surprises me.

So Twitter actually suspended my account for criticizing new Supreme Court Justice Amy Coney Barrett, which surprised me… because of all of the things to crack down on, let alone suspend me over, it was that criticism that broke the camel’s back. I appealed the suspension as soon as I became aware that it had happened and began e-mailing Twitter support after they initially e-mailed me, once per day when it became apparent that they could expedite my “permanent” suspension but not bother to have someone take a look at it to see whether or not it was justified (it wasn’t). But it honestly figures that they can expedite a “permanent” account suspension (and not allowing me to create new accounts in spite of the fact that sorting this out has taken forever), but slow-walk an appeal. We really need better social networking sites.

I am also sitting on a Facebook post block that expires at the beginning of next month for telling someone who is extremely religious not to evangelize to me. They also criticized the fact that I am a leftist, so I criticized them for blindly following their religion of choice, and look where that got me. Both Facebook and Twitter seem to “crack down” harder on users that they can, with reasonable suspicion, ascertain to be AFAB (assigned female at birth) or female, going to almost herculean lengths to protect straight white men… and religious, straight white men at that. I am honestly not sure which of them, between the two, is worse.

I’ve begun to be seen at the local pain management clinic for my migraines with the goal being to start Botox at… some point. We’ll have to find out which point that is. In the interim, I’ve been put on Gabapentin to see if it would be a better preventive medication than Topamax and Trokendi… weren’t, and what I’m pretty sure the rest of my preventive medications have been. I’m not sure how well it’s working because I literally can not feel most of my left hand, the back of my left foot, and random, smaller areas on my left side.

So now I have to sit here and think about what I am willing to “trade” for less migraine pain. Wonderful.

Soon, I have another disability hearing. Go me.

In my spare time, I’ve been stylizing our YouTube channel in the hope that at some point I can get it off of the ground. I’ve been uploading most of the videos that I posted on Facebook to it in the event that, for whatever reason (and trust me, there are several) I do decide to leave Facebook, that way the videos that I’ve taken of my kids are stored elsewhere… and I’m also backing up all of the pictures that aren’t on Instagram and posting them on MeWe for that same reason, now that I know that enough of my friends use it that it’s not a waste of time to have an account. One thing that the site has going for it is that it looks nice and is easy to navigate. Now more people need to move off of Facebook and onto it, or off of Facebook and onto just about any site that isn’t owned by Facebook. The entire point of the process here is to get away from Facebook…

In the interim, I’m continuing to fight for disability benefits with chronic, intractable migraine disorder as my primary diagnosis and my asthma as… something that exists and is there. I have literally heard “you’re smart, you can adapt (to other work)” so many times that if that alone could induce vomiting, it would. My gaming backlog has only increased by leaps and bounds because I have to be careful about using electronics, those being a huge trigger for… wait for it, migraines. There are things that I want to do that I can’t do when I want to, or even at all, because of my migraines, so this “adaptability” is bullshit on the part of the people that want to insist that I am capable of adapting, let alone to work. I expect that I will have to continue to fight for disability benefits and I will be pleasantly surprised if I do not at just about any point.

But honestly, I can see why some people give up. They’re forced to do so through a dehumanizing process.

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